ileostomy reversal

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jules42
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 3/19/2006 12:10 PM (GMT -7)   
 
Hello,
I just joined this today as I was looking on the internet for some information regarding ileostomy reversal.
I have visited my dad today who had an ileostomy reversal 2 years ago. He is still having a lot of difficulties and finds he is constipated all the time unless he takes lactulose and then of course he has diarhhoea and is a slave to being near a toilet!
He believes that there has been a narrowing which has caused the problem of him not being able to pass any waste without it being loose. At the time of the ileostomy reversal it was discovered that there had been a narrowing and he had to have treatment with a balloon to open it up before surgery could take place.
He is really depressed over this and quite rightly feels he should be in a better place than he is, two years down the line. But, equally is very reticent to return to his surgeon because he has lost all confidence in him and the process.
I am worried about him and would like to understand if this is in anyway common after this type of surgery? I think if he felt that this was something that was a common result after such surgery at least he would feel not quite so 'hard done by'. I would be interested to hear anyones, advice, experiences or opinions, all would be much appreciated.
 
Take Care, Julie

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5695
   Posted 3/19/2006 5:01 PM (GMT -7)   

Julie,

It sounds as if your dad has a stricture, a narrowing which makes it more difficult to empty the pouch.  The fix for this is usually very simple and is done on as an outpaitent procedure.  It only involves stretching the area while the patient is under sedation.  His life could be a lot more comfortable if he has this addressed.  I don't believe he is constipated, pouch patients don't get constipation, but due to the narrowing that is what it feels like.

If he doesn't want his current surgeon to do the procedure there are many other qualified surgeons around the country who can evaluate him and correct the problem.  I suggest you go to www.j-pouch.org and ask for a recommendation of a good surgeon in your dad's area.  Someone is bound to have a good referral.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


jules42
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 3/19/2006 5:11 PM (GMT -7)   
Thanks Sue, i'll certainly look into what you have said and pass the feedback onto my dad. I already feel empowered and am sure he will too.
Your help is most appreciated.
Julie XX
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