hi all. i seem to be suffering from colonic inertia. am i really that screwed? from what i am reading, it seems that it is a matter of time before i call it quits and go have a colectomy.
unfortnately i have CD and it is active in the rectum/anus, so i'd be having a colostomy. i dont want a bag (heck, no one does) but then it appears you all say you are doing well and have gotten your lives back, so i am trying to come to grips with what seems to be my eventual future.
are there any physical restrictions with a colostomy? will i still be able to surf? that kind of stuff.
since the colon is gone and there is no water absorption, can i expect liquid stools all the time and to be going often, or is different from person to person and things come and go? how is life with an ostomy? what i can i expect? i am thinking of going to a support group for ostomies i saw posted on the CCFA website.
the docs really have no idea why this happened to me. i had surgery in july 2005 where i lost about 8 inches of the sigmoid colon and another 2 inches at the ileum. surgery went great and i made a full recovery and was back to normal doing everything by november. then around thanksgiving my system just stopped and i havent been able to go to the bathroom since without laxatives. those dont seem to really work anymore - they just turn the stool to liquid but dont promote evacuation since i have a motility problem. i am on zelnorm. i am doing slightly better on it than off it, but still, it aint a solution and it is no way to live.
oh, i posted about colonic inertia in the CD forum, but i dont think any of them had ostomies, but then i didnt really ask about it like i am here.
thanks for any help, advice, words of encouragement, etc etc
cd since 1993