One of the biggest reasons to have this surgery is to improve quality of life. If your quality of life is poor, you are a candidate. Although we both have different reasons for looking at surgery as an option, I also wondered if I was considered "sick enough" to warrant the surgery. After years of rationalizing my declining health, giving up the activities I enjoyed, I thought maybe I hadn't suffered enough. Your feelings and concerns are normal.
Yes, I am very grateful that this option was available to me. I would do the surgery over again if it meant having my life back. I wish now that I had it done sooner, I stayed sick too long and gave up 2 years of my life being sick. That was 5 years ago.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free