Success Stories After Reversal Ileostomy

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Angel Baby
Regular Member

Date Joined Mar 2006
Total Posts : 50
   Posted 3/29/2006 10:56 AM (GMT -6)   
  tongue Hello!  Are there any success stories out there after having a reversal ileostomy?  I suffered for years with chronic constipation, after seeing doctor after doctor, specialist after specialist, I finally found one colectal surgeon that was willing to order a series of tests to determine what is causing this problem.  Unfortunately, I never did a complete research on the pros and cons of having laparoscopic assisted subtotal colectomy with ileal rectoscopy and rectopexy done, especially not knowing the complications that could occur during the surgery or thereafter such as having several blood transfusions and then emergency surgery the next day for abdominal hematoma of the right kidney.  Hospital admission after hospital admission one thing after another for malnutrition and dehydration installation of a PIC Line for a Total Parenteral Nutrition feeding 14 hours a day up to the night before my reversal ileostomy.
Is it normal to lose excessive weight, lose your hair, have total exhaustion, BMs 6 to 8 times daily, hemmorrhoids after a reversal ileostomy?  At what point do you start feeling better, like a normal human being?  What are the chances of having additional problems after the reversal such as infection, blockage, or having to get the ostomy bag back?  What is the standard recovery period in which you have normal BMs, eat regularly, have fun with family, have a beer or two no hard liquor, and work?  I feel worse now than I ever felt before.  Is there anyone out there that has had a reversal for more than 15 to 20 years and is doing better than before their surgery?  I am depressed and worried about never feeling better again. 
Angel Baby sad

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 3/29/2006 12:42 PM (GMT -6)   

Yes, there are thousands of us who are very happy post reversal.  I think you should really post your question on the board.  Although that board consists mainly of j-pouchers, the surgery is similar.  As I mentioned before, this is a very difficult surgery to recover from and you need to be patient with the recovery but continue to research the weight loss especially if you are consuming adequate calories.  If you are limiting your food to limit your freqency that can contribute to the loss.  There is a nurse on the other board who also has a j-pouch and is very knowledgeable with problems.  There are also many people on that site with 10+ years of history. 


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

Angel Baby
Regular Member

Date Joined Mar 2006
Total Posts : 50
   Posted 3/30/2006 10:40 PM (GMT -6)   

tongue  Sue Bear, you are a lifesaver!  Thank you for replying to my post.  Thus far, you have been the most informative and supportive person here.  I will follow-up with your information.  And continued happiness and good health to you!

Angel Baby


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