An Inflamed bowel after a total colectomy?

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Regular Member

Date Joined Feb 2006
Total Posts : 51
   Posted 4/16/2006 9:55 AM (GMT -6)   
I had a total colecctomy about 5 weeks ago.  Yesterday I woke up, changed my bag(i wear a shorter one during the day) and noticed that my stoma was bleeding and a bit inflamed.  By then end of the day all of my stoma was inflamed, bleeding, and very sore!  I know the actual stoma has no n erve endings but the perimetere of it is very tender.  I went to the ER and they said that either my Colitis has come back or it's like irritable bowel.  I just had surgery to eliminate myself of those things and my surgeon never mentioned anything about my small intestine or the part of my stoma being irritated at all...otherwise she wouldn't have made it from that part.  Is it possible that I have just irritated it from moving around too much?  We moved two days ago and I was feeling fine before then, I'm wondering if I just was up and down a bit too much.  What do you guys think?  Has anyone had a similar experience?  I don't want to have to start taking drugs like Salofak again...I am 5 days away form being off Prednisone for the first time in almost 9 months and I refuse to go back down that road....what would be the point of me having surgery to being with?  I am feeling very frustrated right now.
Earthgirl :(

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/16/2006 10:16 AM (GMT -6)   

I believe the ER gave you incorrect information, your UC is not in your small intestine and never was.  Chances are you irritated your stoma during your activity.  For additional reassurance you should visit Shaz's ostomy website. 


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 4/18/2006 7:29 AM (GMT -6)   
I would agree with Sue - UC only attacks the large intestine so if it's absolutely positive you had UC there's no way it's attacking your stoma (which is made from the small intestine) and I would have thought that the doctors would have known that simple fact.

I hope by now, the inflammation has past. It is possible you irritated it somehow and that the irritation was only temporary. I really hope you didn't do any lifting during the move esp with your surgery being so new. You do not want to risk the chance of a hernia which can be a very real possibility if lifting anything with your stoma being so new.

Good luck.
I have had an ileostomy for 30 years now due to UC.
I'm not a complete idiot - some parts of me are missing!

New Member

Date Joined Apr 2006
Total Posts : 3
   Posted 4/21/2006 7:06 PM (GMT -6)   
I would think that unless otherwise advised, that your stomal inflammation is a localized event and not organ pervasive.

Doctors do use the term UC loosely as an analogy rather than labeling small bowel ulcerations as possible incarnations of Crohn's disease.
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