Hello....well i was hoping i could be off any of these sites but i need some much needed support. i have just finished reading all 3 years of posts to see that i am NOT alone. I had a rectal tumor back in Sept. 2010, had chemo and radiation for 5 weeks, and 2 big surgeries. i had my rectum taken out and about
2 feet of my large intestine and was given a temporary illiostomy. Had a ton of complications for 2 1/2 months with the illiostomy so my doc reversed it Feb 2011. So its now been 7 months. I think i beat you all. and this is NO exaggeration. No matter what i eat, no matter, what i take to bulk my stools, no matter what meds natural or pharmaceutical i take i am going 80-100 times a day!!!!! I LIVE ON THE TOILET MORNING NOON AND ALL NIGHT LONG! I am exhausted and have not slept more than a solid 2 hours in over actually 1 1/2 years. I have taken lomotil, Immodium, Opium tincture, do psyllium 2 times a day, take bentonite clay, I only have one protein smoothie after i get out of bed which is usually around 1:00pm-3:00pm because i am up all night going and going. and then one more small meal like rice with avocado or 17 hour slow cooked rice and lentils or rice pasta. even if my stools are more formed i am going and going the 80-100 times a day everyday no change. I have accidents all the time and live in diapers. My body has become immune to the Lomotil and opium tincture. i have taken them so long and so much they don't work anymore. I am seeing a holistic doc now too who is trying to help. I had been given this anti spasm pill because every night when i lied down to sleep i began having these constant awful anal spasms that would not let up or allow any sleep whatsoever. so he gave me this pill called Hyoscyamine. It dissolves under the tongue. it also helped to dry me up a bit more which allowed me to sleep maybe 2 hours the most straight uninterrupted without waking up. i want off all my meds so i asked my holistic doc the original plant form of this drug. He knew what is was right away and had it in his office. It is a liquid herbal tincture called Hyoscyamus Niger. I have been taking it for 2 weeks now with much better results as far as having some hours of being dried up mostly during the day and sometimes if i am lucky a few on and off hours in the night. i only need to take 5 drops in an inch of water and that is all. however if i take one or two drops more i can flip into awful hardened stools and as they try to pass i go into a 10 in pain. its awful. however without any meds i would have constant 24/7 liquid diarrhea all day and all night non sop. and i mean NON STOP!!! I can easily go 20-30 times in one hour!! and i mean running my a-- off to try to make it each time to the toilet. i am getting good at this but still have many accidents in a day. i basically have hardly any life outside my house as i take a HUGE change if i go anywhere. My God is this ever ever going to change? My docs here are at a loss with me and are sending me to OSHU in Portland Oregon coming up. I have a feeling these speciality docs will offer me a permanent colostomy but really i must wait this out and keep trying everything i know to do. i do NOT want a permanent colostomy at all!!!! and I will offer any of you who have the awful unbearable bile burning a prescript
ion powder called, Cholestramine. it is a powdered resin that binds bile. i MUST 100% take 2 packets a day. it does take 12 or so hours to get into the system and start working. the very few times i had forgotten to take my 2nd packet in the evening, i suffer and cry and cry because the burning is absolutely unbearable and NOTING, no ointment, no pill no nothing can stop this burning. so if you are going to take this seriously be on top of the exact times you take it and do NOT delay the 2nd packet by more than 1/2 hour.. Make sure to rinse your mouth out several times after as this resin can be harsh on your teeth. And for anyone advising which i will so value and appreciate, yes i have done the brat diet, no i hardly eat any fruits or veggies, i am a vegetarian for 40 plus years, no meat, chicken or fish. Good news is i am cancer free but man oh man what i go through 24/7 is totally wearing me out and i just have hardly any life outside of my toilet. I know they say it takes a minimum of a year for the bowels to relearn how to absorb the water. But i barely eat so how is it possible i poop so much in a given day. i just don't get it at all. HELP!!!! Thank you!!! Hope there are still some readers here after so many years of posting here!