Wow! Glad I read these responses! I'm a new ileostomate, post op 2 weeks, and still trying to get used to it. I've had CD for 15 years, and this resection/rectal fistula repair with temporary ostomy was my first surgery. But my large intestine and rectum was more diseased than my surgeon thought, so I may have to go back for a second surgery, a proctocolectomy with permanent ostomy, in a couple months.
I agree with placement of the stoma! Mine is higher than what I'd like, but I didn't know better when the stoma nurse marked it. I was wearing low rise pants at the time and she still marked it by my belly button, so now the top sticks out under my shirts. Mine seems to fill up every 2-3 hours, semi-solid and stinky! I'm gonna try the mouthwash trick and see if that helps. And I know it's still early in recovery. I've only been home from the hospital a week. Thank God for Percocet! It still hurts to laugh, though. It still hurts to do darn nearly everything.
Are there any good books out there that can help me with this transition? And does anyone have an opinion about the one piece vs. two piece system? I'm using the two piece system right now, but I'm wondering if the one piece would lie flatter on my abs and not stick out as much, so I wouldn't feel so self conscious about going out in public.
I try not to be a vain person, but seeing that bag at times makes me feel...ugly. I know in time I will adjust. And it's better than the alternative, flaring all the time and having so much diarrhea and pain. But still, I look at healthy people and want to scream to them to not take their healthy bodies for granted.