Artist, I'm with you.
I don't have an ostomy yet, but I browse here for... reassurance?... (hope you all don't mind) because it has been a definite option for me for quite some time now.
I was really sick in 2004, stuck in hospital, and the doctor told me I was probably going to need a permanent ileostomy. The only reason I don't have one now is because I got some relief from Remicade, but it's still possible I may end up with one eventually. Anyway, I got out of hospital in 2004 to discover that my family had told all their friends and associates that I was probably going to have an ileostomy. *They* said that it was important that people knew what I was going through and that I was seriously ill. *I* would argue that it's private, and that if people didn't know I was really sick, then they were really clueless and not worth bothering about anyway.
Anyway... the damage has been done. No privacy for me now, if I do end up with a bag. It bothers me a lot.
Also, I feel as if I'd like time to adjust to it myself, without everybody probing about it and being so *sympathetic* and **understanding**, if you know what I mean. Sometimes it's hard enough going through something, without everybody knowing - in detail - what it is you're dealing with.
Artist, I've only shared my perspective because I think we share similar feelings on this issue. Is that sort-of how you feel? That you just need a bit of time and space and privacy?
Best wishes to you,
Ivy, really from the Crohn's forum.