New girl..having surgery...need opinions quick

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New Member

Date Joined May 2006
Total Posts : 4
   Posted 5/25/2006 6:25 PM (GMT -6)   
I was diagnosed with ulcerative colitis 3 years ago when i was 19 im only 21 now and im having surgery June 16th I'm really scared and i know of someone who has had it done before but i need to know from anyone if you had it done how it was and what you think about it cause i am very scared right now. Please help me!!!

Regular Member

Date Joined May 2006
Total Posts : 35
   Posted 5/26/2006 5:09 AM (GMT -6)   
Hi Bubba

What surgery are you having?

I had surgery for UC 5 years ago and it's given me my life back. I was 24 at the time so similar age to you. I had been on steroids for too long and I suffered fractures with osteoperosis. If I could do it over again I'd have the surgery sooner so I was off the nasty steroids.

I had a permenant ileostomy and was worried about it not being reversable. But that could have meant more surgery further down the line so don't regret it one bit.

My UC can never come back so keep in pretty good health now.

Think of all the things UC stops you doing right now that you'll be able to do without a second thought after you have surgery.

Good Luck


New Member

Date Joined May 2006
Total Posts : 4
   Posted 5/26/2006 3:12 PM (GMT -6)   
Lyndsey thank you for writng me back you did make me feel alot better i think the surgery im getting is the J-Pouch one and your right i need to think of the things i can't do now and then think of things i'm going to be able to do

Thank you

Midwest Phil
Regular Member

Date Joined Mar 2006
Total Posts : 43
   Posted 5/26/2006 7:21 PM (GMT -6)   
Hi Bubba,  I just had my J-pouch on April 21st, and I don't have any regrets.  While I am a bit older (44), I fought the U/C for 15 years.  All the steroids and other drugs, too many to recount.  I recall going to Disney World with my kids two years ago and learning where every bathroom in all the parks were.  Or how about not being able to go to their ball games because of a flair up and usually no toilets (or decent ones without a line) at the ballparks.  As for decent toilets, how non-descriminate do we become?  You know what I'm talking about.  Having to go so bad you didn't care how clean it was or where it was, or worse yet, soiling yourself.
I wanted to hit on some of the things you are probably dealing with while you have U/C so we can look to the future.  I had my colon removed October 2005 and had a temp ileostomy until April.  In February 2006 they reconnected me and gave me a new temp ileostomy and then in April they did the final take down.  I'm not going to lie to you.  I've had more pleasant days, BUT, I don't regret it one bit.  Oh sure, the day's you sit on the toilet and cry because your bottom hurts and the day's you wonder why me?  Well, those pass.  Right now, I am starting to turn a corner and gain a bit of control back, based on what I eat.  I am starting to eat things with flavor and learning what I can eat and can't just yet.  I am back to work full time and things are looking up.  I am not going to fool myself, because I know it will be like this for about a year.  But I am headed there and there's no turning back.  Hopefully by next week I'll feel in solid enough control to start making my kids ballgames again.  Life will get better.  Consider the minor inconvenience for the bigger picture of getting you're life back.  When I had the Temp Ileostomy I couldn't believe how much of a slave the U/C had made me.  It was nice to be back on top.
Good luck to you.  Phil
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