back pain after partial colectomy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

buggnyou69
New Member


Date Joined Jun 2006
Total Posts : 9
   Posted 6/14/2006 8:34 AM (GMT -7)   
HI EVERYONE...WELL I HAVE A TON OF THINGS TO ASK MAYBE I CAN GET SOME HELP HERE. I HAVE HAD A PARTIAL COLECTOMY 2 TIMES. AFTER MY FIRST ONE I STARTED HAVEING REALLY BAD BACK PAIN IN MY SACRIILIAC JOINTS(IN THE DIMPLES OF MY BACK)MY BUTT  AND DOWN MY LEGS. WHEN IT STARTS HURTING IT LAST FOR DAYS. IF I STRAIN TO USE THE BATHROOM OH MY WHAT A PAIN. AND THATS ANOTHER THING I PROBABLY HAVE ONLY 8 TO 10 INCHES OF LARGE INTESTINES LEFT AND I STILL HAVE TO USE MEDS TO GO OR I GET HARD STOOL CONTIPATION!!!???? HELP !! ANY THOUGHTS about THIS SITUATION WILL BE GREATLY APPRECIATED I AM SO FED UP! ALTHOUGH I AM BETTER THAN I WAS I STILL HAVE ALOT OF PROBLEMS THE 2 I MENTIONED ARE THE WORST. THANKS!!........HEATHER

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/14/2006 9:53 AM (GMT -7)   

I guess I would ask your surgeon why he/she left part of your colon?  I thought the standard treatment for colonic inertia is to remove the entire colon and hook the small intestine up to the rectum.

As for your back pain, this could be caused by the awkward position the body is positioned during surgery.  I had the same pain although it was addressed in the hospital with an IV or Toridal, the most heavy of anti-inflammatories.  In fact the drug is so potent that a patient can not be on it for more than 48 hours.

You might need to see a doctor about getting an Rx for the back pain, most likely go back to your surgeon.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


buggnyou69
New Member


Date Joined Jun 2006
Total Posts : 9
   Posted 6/14/2006 1:03 PM (GMT -7)   
HEY SUE THANKS FOR THE ADVICE ....IM NOT SURE WHY HE DIDNT REMOVE THE WHOLE THING. THERE IS ALOT about IT I DONT UNDERSTAND LIKE WHY I STILL GET CONSTIPATED WHEN I ONLY HAVE A SMALL AMOUNT OF LG INTESTINES....ONLY MY CRAZY BODY :-)~ I AM SO GLAD I FOUND THIS SITE AND SEE I AM NOT ALONE AS I THOUGHT I WAS......WHAT STRANGE POSITION DO THEY PUT YOU IN? I WAS SLEEPING AND THEY NEVER TOLD ME LOL.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/14/2006 1:58 PM (GMT -7)   

Well I saw a video of someone's proctocoletomy and it showed the body in a jack knife position but face up.  In other words, not a natural position for the body!

I think you are still getting constipated because you still have a small amount of colon.  From what I understand about CI, the colon just does not work PERIOD.  For me,  I would still have ulcerative colitis if the surgeon left even an inch of my offending colon!   I think you should ask your surgeon (was it a colo-rectal surgeon?) the reason behind keeping a partial colon.  Isn't the idea to have surgery to get off medication?

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


buggnyou69
New Member


Date Joined Jun 2006
Total Posts : 9
   Posted 6/14/2006 5:14 PM (GMT -7)   
Wow I had no idea they swisted you up like that. that would probably explain the numbness on my hip area to. The surgeon said he didnt want to take the whole thing to try and give me some type of substance to my movement ....so it wasnt all fluid. he was a genral surgeon that I was referred to by my digestive health specialist to do the surgury. yes your right my colan does not even "feel" when it is full...wich was a blessing when I had the barium:-) anyway besides not moveing things along i didnt get any of the other normal sensations either. I am not sure the path i took was the right one and i am not pleased that I may have to consider another major surgury. I have had 3 major ones and 10 or so dilitations so i am getting to my witts end. so let me ask you this or anyone that knows...when they hook up the small intestines to the rectum do u have good control?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/14/2006 5:42 PM (GMT -7)   

I have excellent control, just got back from a 100 mile hike in Scotland!  I don't have chronic diarrhea, I think there is some misconception in the medical field about what life is like post proctocolectomy.  My GI was not in favor of my surgery for this reason, he thought I would have chronic diarrhea.  Far from it!

I kind of figured someone other than a colorectal surgeon performed your surgery because I don't think a CR surgeon would have left any colon behind.  Is it possible that you can get referred to a good CR surgeon for follow-up?  After all, they are the specialists in colonic inertia surgery and know the standard procedure of treatment.  I hate to see you have another surgery but it will solve your problem. 

Sue 


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


buggnyou69
New Member


Date Joined Jun 2006
Total Posts : 9
   Posted 6/14/2006 6:02 PM (GMT -7)   
Well my first partial was done by a col/rec specialist but I have moved to Florida since then and I will have to find another. how does your hydration go? do you have to drink more water now? Yes I dont want to have another surgury but my old problems are back...I ate 4 bars of chocolate ex lax today and Nothing. my main worry with this whole thing is that i dont have 5 feet of storage anymore!!! :-o ah oh how much will 8 inches hold lol!!

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/15/2006 6:13 AM (GMT -7)   

My hydration is not different post colon.  I drink a large cup of coffee in the morning and don't drink again until 4pm where I will have some water.  I do take Gookinaid Hydralyte (the best hydrating beverage) with me if I am going to be doing 4+ hours of strenous hiking, if not water does the trick.  In extreme heat I pay attention to eating more salty foods so that I retain more water.  I recommend that you visit www.j-pouch.org and ask the board for a good CR surgeon in your area.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


buggnyou69
New Member


Date Joined Jun 2006
Total Posts : 9
   Posted 6/26/2006 8:59 AM (GMT -7)   
hey sue...where do u get that hydration drink?
.................................heather

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/26/2006 10:34 AM (GMT -7)   
You can read more about it or purchase it at www.gookinaid.com
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


buggnyou69
New Member


Date Joined Jun 2006
Total Posts : 9
   Posted 6/26/2006 11:46 AM (GMT -7)   
thank you!!!!! :-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 5:54 PM (GMT -7)
There are a total of 2,906,288 posts in 318,939 threads.
View Active Threads


Who's Online
This forum has 158276 registered members. Please welcome our newest member, Hogwild.
309 Guest(s), 11 Registered Member(s) are currently online.  Details
Jaiki, BabsBunny, Michael_T, eldonkey, The Dude Abides, Tudpock18, Livv123, Adagio, three 5's and a jack, Tall Allen, iPoop