Weight loss with ileostomy and reversal

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Regular Member

Date Joined May 2006
Total Posts : 35
   Posted 6/23/2006 12:52 AM (GMT -6)   
Just curious to know what kind of weight loss others have experienced with their ileostomy and if they regained the weight after having a reversal.  I lost 18 pounds during eleven days in the hospital and have now lost a total of 23 pounds in the 5 weeks since I've been home.  My reversal was set for yesterday but had to be postponed until July 14.  Do most people regain the weight, stay the same or lose more after the reversal. Thanks, Cheryl

Midwest Phil
Regular Member

Date Joined Mar 2006
Total Posts : 43
   Posted 6/23/2006 8:13 AM (GMT -6)   
I can't speak for others, but I was 200 when I went into the hospital and had the emergency subtotal colectomy.  I dropped down to 172 pounds and after all the surgeries I am hovering around 178 - 180.  I eat constantly, but still maintain in that area.  Of course, this doesn't bother me as I told my surgeon, I'm looking pretty good without having to work out, but while they were cutting, why didn't they give me the 6-pack ab's instead of the three pack they gave me.  Ha ha.  phil

Regular Member

Date Joined May 2006
Total Posts : 35
   Posted 6/23/2006 10:37 AM (GMT -6)   
You crack me up! You're right though. Why couldn't they go ahead and to those tummy tucks and make those 6 packs while we're already on the table? Seems like the least they could do. Have a great weekend and thanks as usual for your input. It really helps to hear from others that have been there.

Regular Member

Date Joined Oct 2005
Total Posts : 65
   Posted 6/28/2006 6:27 AM (GMT -6)   
Hi again - I lost all my weight with the Ulcerative Colitis - around 20 pounds. Was a bit too thin when I had the emergency op and my colon removed on 15 Feb. Since I have had the ileostomy I have put it all on again, even though bag contents are fairly liquid most of the time. I have been eating pretty much what I like (including curry, salads, fruit) with the bag but will have to watch the diet again after reversal on 14 July so expect to lose a bit again. Will keep you posted!

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 6/28/2006 7:38 AM (GMT -6)   

I was at the "right" weight prior to surgery and packed on an additional 34lbs post surgery 5 years ago.  For me the weight gain was appropriate as for years I was unable to enjoy food due to UC.  I took it to the extreme and over ate.  I have since lost 24 of those pounds and plan to get back to my pre-surgery weight before the year is out.


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

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