Hey There Walking Scared!
I am sorry it took so long for me to reply, although I am having a difficult time with my recovery and believe me it is a horrible time right now. I get one or two good days a week. After reading all of the posting under the Ostomy Forum(s), I get upset, because everybody is doing so great in their recoveries from a reveral ileostomy and I am having such a horrible time during mine. I hate to even get out of bed anymore. There are days when I make more trips to the bathroom when I eat anything it goes right through me. My husband is worried about me. I can't gain any weight. I keep dropping weight currently at 113lbs my height is 5'4 & I will be 42 yrs old in two days. But everyone tells me I could pass for a 25 yr old. Then there are days I can't go to the bathroom and that upsets me. Because I start to worry about a blockage, infection, and more surgeries which I can't handle anymore. It is very depressing at times. But I have to be positive, because not only am I going through this, my husband (50 yrs old) was diagnosed w/Gioblastoma Multiforme Grade IV Brain Cancer and they gave him 7 mos to a year to live. So I have to be strong for both of us as well as our children. It like the book "Don't Sweat the Small Stuff" in life.
I am glad you responded to my replies. You have gone through a great deal yourself. You must have a wonderful support system built of family and friends. To answer your question, I had a colectomy (removal of my large intestine) through laposcopic procedures with major complications ending up with an ileostomy (ostomy bag). I had my reversal ileostomy (no more bag) 12/05. I can't believe you ate an ear of corn. Were you able to pass it through your ostomy? When I had my ostomy bag, I watched everything I ate. Mostly real soft foods. I was given a list of foods that I could eat. My ostomy never formed a regular stool. It was mostly the form of liquid and sometime soft, loose stool. Did your surgeon give you a list of foods to eat for easy passing of stool in your ostomy bag? During my ostomy bag experience, it was very time consuming to change the patch and bag. I made sure that I didn't have anything to eat or drink when I was going to change it and clean the ostomy site. Otherwise, the ostomy would poop all over and what a mess. I never got used to changing it until the last week before my reversal. My ostomy nurses told me to get everything prepared in front of you and clean the ostomy site w/soap and water. Dry it good. Then there was a medicated pad I would wipe over the site. You should have your patch with the adhesive on it already and attach it over your ostomy site. Then place the clean ostomy bag to the patch and you are done. The key is to have everything all ready to roll when you are doing this. Don't worry it takes lots of practice. And remember don't let your bag fill all the way up even if it is a quarter full empty. How long did your surgeon say you will have the ileostomy for? Your ileostomy is only temporary right? Did you have UC, Crohns, Colonic Inetia? I had a Colonic Inetia-Chronic Constipation, Low transit colon which I suffered over 15 years.
Please keep in touch. I do review the ostomy site from time to time. Sometimes when I can't sleep at night, I read the site and reply that is why I reply at night during the day it is sometimes difficult. Hope all is well in West Virginia. Good all Northeastern Pennsylvania is humid and wet this morning! You have a great weekend!