BMs and Diet Post Colectomy - Please Reply

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Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 7/18/2006 10:14 AM (GMT -7)   
Hello Everyone,
 
I have been reading from this forum for a while and I am so glad that many of you are doing well.  I have a couple questions and I would appreciate any help or advice...thank you in advance.
 
I am 32 and I had a total colectomy (I still have about 6-9" of colon left) about 2.5 weeks ago.  I have noticed a couple of problems that give me concern. For one, I cannot eat often or very much and the dr is getting frustrated that I am not eatting 3x per day.  When I eat (not matter if it is half an apple or one egg), I get very extended in my stomach and the distention lasts for about 6 hours until I have a BM. It is very uncomfortable.  I drink about 70-80 oz of water a day.  I am allergic to wheat so I do not eat pasta or bread.  I try to eat beans for fiber for lunch and an apple for breakfast.  These two items are all I can eat in one day because of the discomfort and distention. 
 
Also, my bowels are very hard to move.  They are not hard in consistancy, they are thick and paste like. 
 
My dr says I need to eat more food so I can go to the bathroom more than once a day.  However, I cannot eat when I am bloated and having stomach cramps.  ACCKK! In addition, I have gained 4 pounds this week while eating fish and beans...not enough to cause weight gain.  Did anyone else's body react this way?
 
Any suggestions?  I truly appreciate ANY and ALL comments.
 
Best Wishes,
Amey
PS.  I do walk 3-4 miles per day. I am a fitness instructor and I am trying to keep my legs in shape.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5697
   Posted 7/18/2006 1:05 PM (GMT -7)   

If you had the surgery for colonic inertia, I would imagine that the remaining colon is giving you problems.  I think you really need to pursue this with your surgeon.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 7/18/2006 1:13 PM (GMT -7)   
Thanks Sue - I believe there were conflicted results on whether or not I have/had Colonic Inertia.  Is there a treatment for this problem?   

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5697
   Posted 7/18/2006 2:32 PM (GMT -7)   

I did not have colonic inertia, I had UC.  But I think the standard treatment is to remove the entire colon and connect the small intestine up to the rectum.  Yours is the second comment I have seen about a CI patient who had a portion of the colon left, the other person is having problems too.  I would ask your surgeon why he/she opted to leave a portion of the colon in place and did not remove the entire organ?

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

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