I want to be there for you sweetie!!! I have only been home 3 days from my surgery and I have so much to tell you. I guess some stuff wouldn't really help right now, but when you come home I would love to talk to you if you need any help. I am so
open to phone calls too, because that is what is really helping me now. I met two wonderful ladies here and they talk to me any time I want!
I have a 2 and 1 year old at home and that has been very hard like wmnak said. I can't lift them! But my sweet husband took time off work for a while that I'm home. The girls will go to daycare during the day for a while when he has to go back to work. Makes me sad cuz I'm a teacher and I wanted to spend so much time with them this summer! Now, I'll be able to start lifting a little just when it's time to go back to school! So line up some help and don't be afraid to ask for stuff. That's one big lesson I'm learning. Sometimes leaning on others makes them feel valuable too, you know? Ask for help!
My surgery went very well and I"m told I have a great stoma! I had surgery last Wed the 12th but I got sepsis on Saturday ( a blood infection that is very rare) that set me back about
2 days. But I was surprised that the incision pain really wasn't bad. They gave me a morphine pump that I could press whenever I wanted. But I didn't really need that after the second day or so.
Now that I'm home, I 've had some painful gas after eating, but I think the key there is eat small small portions and honestly start with few foods... I've been eating poptarts, cottage cheese, graham crackers, milk, and apple juice. Sounds so unhealthy... and a bit depressing, but this is only temporary! I can't believe I did it but I ate broccoli my second night home! Holy cow! Can you say gas producer!!! I felt so stupid calling the dr but the pain was so bad! He said to take Gas-X and lay on my side and it really helped.
I think I've probably given you too much to think about
, but I want you to be encouraged, I am a young mom too, and I am embracing this new lifestyle because I don't want to miss a thing. I love my family, Ilove my God, I have so many supportive friends who love me. I'll be you do too! You can do this!
Please e-mail me if you want. Don't want to overwhelm you, but I can be there for you sister if you need! I would help me too, you know? That there's someone like me out there going through the same thing.
BTW I will say that mine is an ileostomy, but I think that most things are the same except for the material that I pass is more liquid consistency.
total permanent ileostomy due to UC on July 13
trying to get it all figured out