NEW HERE! Possible colectomy surgery for colonic inertiaI

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soberlunatic
New Member


Date Joined Aug 2006
Total Posts : 6
   Posted 8/7/2006 11:08 AM (GMT -7)   
I have been diagnosed with IBS for over 10 years, and Zelnorm was a miracle drug for 6 months.  I was able to live like others and actually go to the bathroom every day!  The Zelnorm stopped working and I didn't go to the bathroom for weeks at a time.  I have done the sitzmarker test and failed, and will have a colonoscopy on 9/14/2006.  I am now taking colchicine (med for gout) to help with bowels and I feel nauseated and cramped.  I am constantly bloated, have horrible gas and can't go!  My doctor says that if this medicine doesn't work, I will be having colectomy surgery.  We haven't discussed it in detail, but I have lots of questions.  I tried to read through threads, but I can't manage to get the detail I want.  Can someone tell me:
 
what is surgery prep like?  how long is the surgery? what is the recovery time?  what will my energy level be like?  pain meds and hospital for how long?  what can I eat?  Will I be able to go poop normally sometime?  Can someone who has gone through this let me know?

Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 8/7/2006 2:47 PM (GMT -7)   
Hello! Soberlunatic
Normally, a Gastro Doc will do a Colonscopy first then the Sitz Marker's Test, and then the Defacagraphy test before determining what they are going to do for you.
Prescribed laxatives or softeners did not work for me either, but be very careful at first before you have the surgery. Ask your surgeon loads of questions such as how long is the recovery period? When can I start eating normally again? When can I go back to work? Will I feel better after all this? Will I feel 100 percent better than I do now. I had a subtotal coloctomy last fall lasted 9 1/2 hrs long, then ER surgery the second day for open surgery for hemotoma around the kidney, TPN inserted for malnutrition on 10/31 until 12/20 when I had my reversal ileostomy. My surgery was supposed to be 3 to 4 hours long via laposcopic or open surgery and no ileostomy bag, but there were complications. Now my bowel movements are 6 to 8 times a day some regular and some diarrhea. I can't eat or drink everything as before the surgery, I became lactose intolerant from the reversal ileostomy. It is 11 mos since my subtotal colostomy and I still feel tired, wore out, confused, can't control frequent bowel movements unless I starve myself especially if I have to go somewhere. I believe this procedure is not for everyone. Everyone is different! Be certain that you are a prime canditate before jumping into something you are not 100% sure of. Good Luck! Angel

soberlunatic
New Member


Date Joined Aug 2006
Total Posts : 6
   Posted 8/7/2006 4:49 PM (GMT -7)   
Thanks for the info.  I talked with dr today and they are tweaking the colchicine to help me go more frequently- but less like diarrhea.  I feel nauseated all day, but feel good otherwise.  I am sure if I am patient I will find out what I need to from my doc.  Until then, I will have a colonoscopy in september.  Yippee!  I've only ever had sigmoidoscopies, so I am glad I will be out for once! 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5697
   Posted 8/7/2006 6:16 PM (GMT -7)   

I had a procto-colectomy with a j-pouch due to UC not CI but contrary to Angel's post, this surgery has given me my life back.  I have no diet restrictions and am very physically active.  The best advice I can give you is to find a good colo-rectal surgeon and go for a consultation.  My surgery was more complicated than a straight colectomy (my rectum was removed too, for CI you get to keep your rectum).  The prep was the same as for a colonoscopy, no food for 12 hours and a bottle of mag citrate.  Prep for CI might be more involved, I don't know.  Surgery was 1.5 hours (I had one of the top surgeon's in the country) and I was in the hospital for 7 days.  I was only on morphine for 12 hours, vicodin after that.  I went back to work 3 weeks after surgery.

I do not have diarrhea, I have formed stools and poop normally, just more frequently. 

Sue 


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


soberlunatic
New Member


Date Joined Aug 2006
Total Posts : 6
   Posted 8/8/2006 1:50 PM (GMT -7)   
that sounds more positive.  Yesterday was a bad stools day and the doctor changed my dosage of colchicine around so I wouldn't have so much diarrhea.  I am hoping this will work and surgery will be a thought of the past.  I am just afraid the medicine will stop working like zelnorm did.  Does anyone have experience on colchicine?

Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 8/10/2006 7:05 AM (GMT -7)   

Hi S

I am 7 weeks post op for laparascopic colectomy with ileo rectal anastomosis.  I decided to go to the Cleveland Clinic even though I live in NY due to their reputation. I wanted a surgeon who did this all the time and not someone who did hernias one day and gall bladder the next plus the laparascopic procedure is a bit less invasive...

My surgical prep was miralax and ducalax pills...I only ate full liquids for 3 days preop so the prep was not so bad.  Preop I had an injection of heparin and anti embolic compression boots to prevent blood clots.  I also was given cipro and flagyl intraop and post op for a few days.  My surgery took approximately 4 1/2 hours due to adhesions from previous multiple gyn surgeries and the fact that the intestine was extremely redundant.  I had a pain pump which I used when getting in and out of bed and whenever necessary.  I walked the next morning and took a shower, although sitting in a chair and with help on the 2nd day.  They slowly advanced my diet.  I pooed on the 5th day and was discharged on the 6th.  I was given vicodan for pain and we returned to NY on the 10th day.

I have had no major complications except I go to bathroom about 15-20/ day and am now taking imodium to try to get this under control...butt is a bit sore..I am retired so bathroom issue not a big problem...The surgeon told me that it may take anywhere from 6 months to a year for everything to calm down...I eat everything without problem...and to tell you the truth I'd rather be like this then to endure the pain I was in before..

I hope this helps with your questions

 

 


Somer
Regular Member


Date Joined Mar 2005
Total Posts : 104
   Posted 8/10/2006 1:47 PM (GMT -7)   
Hey soberlunatic, welcome to the site.
 
I had a total colectomy with ileorectal anastamosis February, 2005.  I suffered with constipation my whole life.  Right before my surgery, It was a blessing if I had a BM every 3 weeks or more.  I tried everything to help my bowels along, but always came up short. 
 
I was in the hospital for 6 days.  From what I can remember, my surgery lasted 4 hours.  Didn't have much pain while I was in there, or after I got home. I had an epidural for the first few days for pain control, then a PCA (pain pump).  After I was discharged, I was given a prescription for Percocet, that I never even took.  I stayed at home to recoup for 1.5 weeks, then went back to work. 
 
Currently, I am able to eat WHATEVER I want, without worrying about it backing up.  I have a BM once a day, usually.  Sometimes twice a day, if I really ate a ton the day before. 
 
Would be happy to answer any other questions!  tongue
 
~Take care,
Somer

soberlunatic
New Member


Date Joined Aug 2006
Total Posts : 6
   Posted 8/11/2006 6:04 AM (GMT -7)   
That sounds even more hopeful!
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