I am new to the ostomy thing, having just had my emergency surgery after years of pseudomembraneous colitis and a sudden bout of abscesses, fissures and the like.
Now, 3 months later, my hair is coming out by the handful as well as all over my pillow at night and it is raining hair when I comb or brush or just touch it. Let the wind hit my hair and . . . well . . . I wouldn't want to be up wind of me especially if anything on me was sticky or eating a sucker or ice cream cone.
I am finding hope in the posts from 2006 which said that almost everyone had their hair come back. This is especially scary since my mother went virtually bald after her breast cancer surgery (no chemo and only 3 localized radiation treatments - which by the way cost her heart function since they were directly over her heart and it began to fail right after the radiation finished). She has some hair but not enough that you can see it if you are more than a couple feet away from her. And it came out before the radiation began. The doctors told her it was a result of the surgery and would come back.
I've had many surgeries in my life: appendix as a kid, partial hysterectomy and adhesion separate surgeries in my 30s, full hysterectomy in my 40s and my gall bladder removed 10 days after the full hysterectomy (one caused the other by pulling on adhesions which pulled the gall bladder apart). My hair remained thick and course. Now it has become fine, brittle and is leaving me faster than the men in my life.
I have seen reference to vitamins and some other things (checking out the Nioxin thing). Could those who have had success with regrowing or retaining their remaining hair, please tell me what they have done?
I will be watching this forum for other things too. For the first time in my life, I want a support group and I can't find one in my area. This is all so new to me and the doctors act like I'm being silly when I mention concerns or ask questions about the loop colostomy, the bags and EVERYTHING I find that goes with it. I mean they don't know and my nurse was great but the questions really started coming up after the 30 days was over and no longer had Carol coming to the house and covered by insurance. Besides, there is no replacement for the information that you can get by others that are walking the path ahead of you. Is there?