I was only 8 years old when I got sick with UC, I was so sick! Nothing I'd eat or drink would stay in me. The bathroom was like a second home to me. When I finally got to see a doctor, he diagnosed me with Fishers, then he said they were tummy ulcers, then he told us it might be ketchup!! (right) I went through a lot. The doctors weren't helpful at all, so they finally sent me to the city where I practically lived in the hospital. There I had to go through the most painful tests ever. Where they finally told me that I had UC through my entire large bowels. They put me on Prednisone, vitamins, antimflamitories, and much more. When I turned 16 I had finally had enough of the pain and the pills and being afraid to go anywhere. I practically demanded the doctor to do the surgery, and they did. The surgery went well and I was doing great, then a few weeks later I was having trouble again. I had terrible pain in my stoma, I went to the city again and had to have more surgery. The doctors had sown my stoma to tight, i had surgery to fix that. After about a year I had a Bowel Obstruction, that was so painful. For the first year things were pretty tough but, I got through it. I will have my ileostomy for the rest of my life, I was diagnosed with undetermined colitis a few years ago. which means that I may have crohn's and having the J-pouch surgery may make me sick all over again. I've decided to stay the way I am. I also realise that a lot of people who have an ileostomy have trouble with their pouch leaking, I had that problem too. I had started using a new supply(convatec) and cleaning the area VERY, VERY good, I haven't had many problems since. Out of 7 yrs I have had only 4 accidents, and that was my fault! I have to change my pouch every 6-7 days, which is great!
I have had my ileostomy for 7 yrs now and I am very happy. I have a great fiance(together 3ys)and plan to get married in the next year or so.
Things do get better even while having a ileostomy, it just takes time and patients. I have written this long note today to tell you about myself and if anyone needs to talk that I am here to listen and answer:) I find it comforting to talk with people who have the same thing as I do, and I like to help in any way that I can! So if you want to know anything at all please e-mail me at firstname.lastname@example.org
Talk to you later :)