Posted 11/21/2003 3:04 PM (GMT -7)
Hi Janet- I have Crohn's-colitis, which is Crohn's of the large bowel. Unfortunately, it's not curable and does tend to reoccur in the small bowel after a colectomy. The average length of time for remission after a colectomy is 5 years.

18 months ago I had 2/3 of my large bowel and a foot of small bowel removed that had backwash ulceration from the colon. The small bowel is currently healthy, but the remaining piece of sigmoid colon and rectum have since flared up so I can't have reconnective surgery.

In terms of 'luckiness' in the Crohn's stakes, us with Crohn's-colitis are probably the better off compared to those with Crohn's in the small bowel. The large bowel isn't neccessary for digestion (unlike the small bowel) so we're lucky that we were affected in expendable bowel first.

Kez

 
25, from Hampshire, UK. Crohn's-colitis (diagnosed 2001) and ileostomy (2002).
My Crohn's, Colitis & Ostomy Pages: http://www.crohnszone.co.uk
 

Last Edited : 11/23/2003 1:41:42 PM GMT

Posted 11/22/2003 1:39 PM (GMT -7)
Thanks Kez, and congrats on the Rugby World Cup. Since I was first diagnosed at 19, things have changed, treatment, ideas, everything. I travelled to the UK and live for 18 months 10 years ago and found it interesting that I got all supplies from a chemist, are things the same now or have they changed, interested because I will be, in the future returning for a another trip.
How is your health now? Hope you are on top of things at the moment.
Regards
Janet.
Posted 11/23/2003 1:43 PM (GMT -7)
I'm in remission in the bowel that I use, the 1/3 of the large bowel that was left in has flared.

With regards to medicines- you get then prescribed by the doctor, take the prescription form to the chemists, they dispense it for you then and there and voila! Medicines to go!

Kez
 
25, from Hampshire, UK. Crohn's-colitis (diagnosed 2001) and ileostomy (2002).
My Crohn's, Colitis & Ostomy Pages: http://www.crohnszone.co.uk
 

Posted 2/2/2004 2:50 PM (GMT -7)
Hey KezP, I too have crohns colitis, However when I first became sick 13 yrs. ago, I was diagnosed with crohns, it was only 6 yrs. ago that it was "upgraded to crohns colitis. It affects part or all of the colon. This form comprises about 20% of all cases of crohns disease. Variouse patterns are seen. In about 1/2 of these cases CD lesions may be seen throughout one continuous subsegment of the colon. In another 1/4, skip areas are seen between multiple diseased area. In the remaining 1/4 the entire colon is involved with no skip area. Unlike UC in which inflammation is usually confined to the inner mucosal surface, CD typically involves all layers of the affected tissue. Crohns can affect anywhere from the mouth to the anus. I also have severe perianal crohns skin tags that were mistaken for hemerroides JUST before I was diagnosed, they didi a hemerroidecotmy on me and now i cannot and have not been in remission for 13 yrs, since being diagnosed.
Posted 2/16/2004 12:01 PM (GMT -7)
Hi Pb4-thanks for the information.

I had deep patchy lesions throughout my colon (no rectal involvement through) and backwash ileitis. The lesions I did have had gone through the entire tissue of the bowel so that's why a lot had to come out.

I consider myself pretty lucky though- it will be two years since the op in April and thus far I have no symptoms of Crohn's returning in the small bowel. My leftovers are doing well too, and all blood tests are at normal levels.

Kez
 
25, from Hampshire, UK. Crohn's-colitis (diagnosed 2001) and ileostomy (2002).
Currently in remission following my operation.  
 

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