any one gone from colstomy to ileostomy?

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New Member

Date Joined Mar 2005
Total Posts : 6
   Posted 9/21/2006 7:38 PM (GMT -7)   
Hello All
Need Advice-anyone gone from colostomy to ileostomy? I know with the colostomy the stool is more formed and with the ileostomy it is more liquid. With the ileostomy, do you go to the bathroom "as soon as you eat"? Do you have to change your pouch often with an ileostomy? Do you lose a lot of weight after surgery with an ileostomy? Sorry for lots of questions. I have a colostomy currently. Over the summer I developed a bowel obstruction, then several abscesses, and just complication-one after another. My colorectal surgeon wants to "switch" sides and I want to know more facts before I dive into anymore trouble then I already have. I would love any advice that I can get. Thanks!

Veteran Member

Date Joined Jul 2006
Total Posts : 1123
   Posted 9/23/2006 7:49 AM (GMT -7)   

Sorry - I haven't experienced that (yet?) so can't offer any personal comments.  There was a thread recently on UOAA about this.  Or was it Ostomyland?  Anyway ... keep searching ... I expect someone will be along soon with some answers for you.  I'd think, if the large bowel isn't working, that an ileo would solve your current/future problems.  But the output would be different.

Good Luck!  :-)

Regular Member

Date Joined Nov 2004
Total Posts : 40
   Posted 9/24/2006 12:48 PM (GMT -7)   
 Hi Aimee--first of all let me say that you will be in my prayers.
 Secondly--I had a  colostomy in April of 99..( Crohns )
I had a lot of problems with "blowouts" after the first year.
My health went downhill--and long story short--the Crohns
came to the skin surface all around the ostomy site. I was down
 to a mere 80 lbs. I went into surgery and my colon was removed
along with a portion of the small intestine. I went from
colostomy to illeostomy and I must say that I've never done better. I have no problems now--and any "blowouts" 
    ( only 6 in 2 years)
are due to me not changing the appliance when I should have.
I have done well in that I eat pretty much what I want. Am not on meds of any sort as I have no disease. There is really not too much if a difference in the "Bowel action"...I wear a mini bag
and change it about 4 times a day---take it off-dispose of it in a ziplock bag and snap a new bag on. I can change my bag in 2 minutes or less--AND>>> name that tune in 3 notes  ;-)
Good Luck and God Bless!!              Sandee

"For those who hope in the Lord shall renew their strength.  They will soar on wings as eagles, they will run and not grow weary, walk and not be faint."  Isa. 40: 31 & 32
Love, Joy, Hope, Peace and Lots of Laughter!  Sandee

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 11/16/2006 11:20 PM (GMT -7)   
Hi folks. I'm new to the sight though I've had an ostomy for 17 years. I had a colostomy in '89 and then an ileostomy in'04. I wish I had an ileostomy in the first place.Like most I was emtionally a wreck when I first had a colostomy. It was the inability to controll the sound of gas that I had a hard time getting over. I would always be afraid that I would have loud gas right in the middle of an important business presentation. Although I learned to control gas by the way I sat or how I would postion my arms while standing, I was always conscious of it.  Now with an ileostomy I have no audible gas at all!! Plus, stoma output is much more predictable. I never new when my colostomy would wake up. Now, I usually have output about 30 minutes after I eat. I always had a fairly loose stool with my colostomy, so maybe I empty the pouch a little more often now(about 6 times a day). Good luck with the new ostomy. If you've become used to a colostomy you should find havingan ileostomy easir.
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