Say No To The Knife??

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Smiley Sim
Regular Member


Date Joined Aug 2006
Total Posts : 49
   Posted 10/1/2006 11:00 AM (GMT -7)   
Hi all,
 
I've got a few questions I was hoping you could answer?
 
I currently have a stoma - named nelly - as in the elephant that is always spouting!! yeah I am coping great with my little friend. However my surgeon is advising me to start considering a reversal in the coming months. As much as I would love to have everything back inside, I am a little worried.
 
  1. Does the reversal and production of an internal pouch hurt more than the formation of the original stoma?
  2. How many times do you pass motion daily?
  3. How difficult is it to retrain your body to hold the motion in?
  4. Do you have control over passing gas??

Sorry for the amount of questions, but I really would like to hear first hand from those that have experienced a reversal. Gives me a better insight into what life will be like. Appreciate your help guys.

Stay happy.

 

Smiley

 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/1/2006 4:13 PM (GMT -7)   

I will try and answer your questions but also recommend you visit www.j-pouch.org

1.  I assume that you have your pouch made and all you need is to close the stoma?  No, this surgery is far less painful as 99% of the time they complete the work via the stoma and there are no other incisions.

2. My frequency at 5 years post surgery is about 5-7X per day.  As quick as it is to urinate is how long it takes to empty my pouch.  There is no urgency.

3.  Right following surgery both frequency and urgency can be high but it gets better.  I returned to work 3 weeks post surgery and saw improvement in my new plumbing in 6 week increments over the first year.

4.  I can tell the difference between gas and stool.  However, that took time.  The best advice I can give you is if you choose the reversal you will need to be patient with the process.  It takes time for the small intestine to learn how to behave like a colon.  For me it was worth it, I didn't ever get along with my ileostomy.  I recommend that you get educated on the reversal.  Talk with people who have gone through it so you clearly understand the recovery process.  I think it's harder for those who have had a longer period of time between surgeries as you feel so good now you don't want to go backwards. 

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


jeffchem
New Member


Date Joined Oct 2006
Total Posts : 7
   Posted 10/3/2006 1:02 PM (GMT -7)   
Hi,
I had a total colectomy with a J-Pouch construction and a loop ileostomy in August of 2005. I had the ileostomy reversed in March 2006. I am glad that I had it because it helped me to heal but I was glad to be rid of it. The reversal was a piece of cake compared with the colectomy. I was out of surgery in about 2 hrs and after recovery I was on the phone with my work place giving them and update. I went home a couple of days later. In a few weeks my stools were semi-solid. The only problem that I have now is that I wake at night and can't go back to sleep without pooping. I think it is more of a gas problem and so I am going to try some Beano at night.
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