Suggestions on Your Ostomy

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vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/28/2007 10:33 PM (GMT -7)   
Aewsomeame- You don't have to fold and tape. Just pull the front of your pouch down, while holding the faceplate. It will bring the top of your pouch down to where the pouch is secured to the faceplate. You should never have a problem. Also, as a matter of choice, I've tried filtered pouches and prefer to use a regular pouch with a deoderant. Again, this is just a matter of choice. I've had an ostomy for 18 years. And, although I'm no expert on ostomies, I'm an expert on mine!!!
Also, and this is just a matter of choice, I tried using an ostomy belt and HATED IT. I didn't need the extra encumberences from a belt. Also I found it shifted a lot, and actually started pulling off the appliance once. So, I said, never again. Again, it is just a matter of choice.
 
Good luck with the ostomy. Believe me, in short time it will become a regular part of you. You'll find ostomy changes take less time. Your emotions will change. Your attitude about it will change. If you are like I was 18 years ago, your ostomy seems bigger than life right now. Your mind has a nasty game of playing meanspirited tricks on you, and making things seem way bigger than they really are. That will change too. Your ostomy really will become "no big deal" to you. Just give it some time. You didn't mention your attitude was a problem. I'm just making an assumption because I thought at the time my world was over. That was my mind playing those tricks on me.

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 629
   Posted 1/30/2007 9:29 AM (GMT -7)   
heyy

the pulling down method doesn't seem to work? i think it's because the filter allows the bag to reinflate. or maybe i'm just on crack and can't figure it out lol. i'm not liking these filter pouches either, seems they plug up within a few hrs of installation, and one has to burp the gas out regardless. butttt, since the government is paying for all the supplies while the ET nurse still visits me this is what i get.

& nope, my attitude isn't a problem. i'm a bit worried about future relationships 'cause i'm "only" 25, but i figure if anyone can get past my personality they're NOT going to have a problem with my bag lol. other then that this is the BEST thing that's happened to me healthwise in a long time...sure it's a bit awkward, butt....it's been a month since my surgery and when i leave the house i have no worries about where the nearest washroom is, no more running to the bathroom, or sitting on the toilet for 30+mins every morning. now i wake up, dump the bag, wash my face, and get dressed all in about 10mins. i have sooo much more time on my hands now, and it's all PAIN FREE, wootwoot.

i don't understand why people DON'T have this surgery done. it should be mandatory for crohns/ulserative colitis patients. while in the hospital i met a guy who was on surgery #14 for crohns. hadn't worked in 15yrs. now how stupid is that, all they're doing is cutting out a few inches of colon every time. nice life buddy. i have a friend from school who's doing that too, he's had 5 surgeries and he still has colon left. they both could have had one surgery and most likely been relatively healthy for the past X number of years...but then ya, then you need the BAG.....oooooo.....sure it'll take awhile to figure out what works for you-which i'm in the process of, but this thing has given me sooo much freedom. i can't wait to get on my atv in the spring or my sled next winter and go riding more then a few kilometers from a washroom..heck maybe i'll even go camping again :D [/endrant]

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 2/2/2007 11:22 PM (GMT -7)   
Matt- I'm glad to hear your attitude is good. You're far more ahead of the game than I was shortly after my surgery. Hats off to you brother!!! Once you're back on your ATV you'll really feel like yourself again(minus the pain and the constant runs to the bathroom). You'll really feel independent.

DocwithUC
Regular Member


Date Joined Aug 2006
Total Posts : 28
   Posted 2/3/2007 8:32 AM (GMT -7)   
Hey Matt. Reading your post really makes me feel a lot better. I am considering perm ileostomy for UC (I think) and just to know that you can get back to "normal" life makes me feel optomistic.

I noticed your post says "indeterminate crohn's/UC". Just wondering if they said that on biopsy or what? My colonoscopy showed UC but my Prometheus serologies (blood tests) show Crohn's. Also, did they tell you that you may have more problems in the future because of possible Crohn's?

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 629
   Posted 2/6/2007 6:15 PM (GMT -7)   
hey doc

i was dx'd with indeterminate back in 1991. they told me once they got the colon removed that they would be able to say one way or another whether it was crohns or UC...but i'm still interminate! apparently my colon showed signs of crohns in one area, then 1" further on there would be something that would only be associated with UC, then 1" further only something associated with crohns...and on and on. so i'm still interminate. (i've had tons of biopsies & scopes over the years, always been indeterminate)

so basically it's wait and see. crohns can attack anywhere from the mouth to the rectum, so if it comes back i'll know i have crohns....if not, guess it's UC. right now i am medication free..first time since 1991 and i feel fine. (minus normal post op stuff of course)

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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