sorry, strange question -- what does constipation feel like with an ileostomy ???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Feb 2007
Total Posts : 1
   Posted 2/3/2007 8:02 PM (GMT -6)   
Hi !!   I have a temporary loop ilestomy for about 3 weeks now and wound up with a 13 inch incision.   As far as I know, as of right now, I have had no EXTREME compications.  I just have to say this whole thing, surgery, hospital stay, the bag, is horrible (and believe me, I could go on and on). 
Just getting to the point for the moment, my strange question is this... I feel like I have to go to the bathroom and was wondering if this is a normal feeling ???  I feel like I want to push, if you know what I mean.  Is this constipation ?  I haven't gone to the bathroom in any way for more than 3 hours....... usually I hear the bag pretty consistently.   Thanks for any advice.   

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 2/3/2007 9:49 PM (GMT -6)   
Do you mean you feel like you have to go to the loo in the 'old' way? If so, this is a sensation called "Phantom Rectal Pain". Just like an amputee can 'feel' their amputated limb itch, so your body has to get used to it's new plumbing. It's annoying but completely harmless.

With a loop ileostomy, you may occasionally see stool coming out of your rectum and anus. This is because sometimes, the stool enters your second stoma (called a mucous fistula) and works it's way out as 'normal'. This is to be expected and very normal as well but can be scary if you're not warned about it.

Ileostomates can't really get constipated as our stool is so loose. We can, however, get blockages which means there will be no output - but you will know if it's a blockage. There's usually severe cramping, nausea and often you will have a temperature. If blockages last more than a few hours, it's time to seek medical advice. Ileostomies will usually work about 95% of the time.

Good luck and I hope by now, your ileostomy is back to it's usual self.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Regular Member

Date Joined Feb 2004
Total Posts : 30
   Posted 2/4/2007 1:44 PM (GMT -6)   

I don't have constant output into my bag, it depends on what I've eaten or had to drink, and how long ago. I can go hours without any output, but three days is not normal, if you've been eating or drinking normally. My understanding is that you should be having some output 3-5 hours after every time that you eat or drink.

Anita Summers
Total ileoproctectomy '05

UC age 10 for one year, and at 18 for one week

UC again on and off for more than half the time from age 35 to 43

UP (proctitis) for 3 yrs straight, 43-46

ileostomy Jan 06, proctectomy July 06

Now, life is GREAT!

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 11:57 AM (GMT -6)
There are a total of 3,005,111 posts in 329,198 threads.
View Active Threads

Who's Online
This forum has 161762 registered members. Please welcome our newest member, TruthSeekerSam.
306 Guest(s), 11 Registered Member(s) are currently online.  Details
Mind body spirit, Tagier, sebreg, Bohemond, Girlie, getting by, FlowersGal, InTheShop, quincy, halbert, iPoop