Help put my mind at ease!

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New Member

Date Joined Feb 2007
Total Posts : 1
   Posted 2/7/2007 10:13 PM (GMT -6)   
All, I am so glad I have found this place.  I am facing a total colectomy.  They plan on removing my colon and tying my small intestines to my rectum.  Unfortunately I have had several surgeries on my abdominem including removing shrapnel from my tour of duty in Operation Kuwait Freedom.  Right now my colon does not work as in food, if I don't throw it up, will make it to the colon however when it hits the colon everything stops.  The Mayo Clinic has tried a bowel pace maker which did nothing for helpng me so now they say now that my colon is "paralyzed" and that the best situation for me is to remove it.  I can honestly say that I was scared as a 22 year old kid putting my feet down in the sand going into combat during Desert Storm one but I am scared to death about this operation.  I can only see the bad things and it is keeping me from sleep and functioning.  Can anyone who has had thier colon removed shed some light and maybe any words of encouragement.   Thanks all for your help and advice in advance.
RangerDawg 75

Regular Member

Date Joined Jun 2004
Total Posts : 231
   Posted 2/7/2007 11:13 PM (GMT -6)   
Ranger, there are many who will answer you so be patient. I have had mine removed but have a permanent ileostomy with a pouch, and you won't be like that. I think you will do fine, so read the posts of the totalcolectomy group here on this site. They post on this ostomy board. There are a bunch of them who can ease your mind. Thank you for your service to your country. God Bless,

Country Chic
Regular Member

Date Joined Jan 2006
Total Posts : 22
   Posted 2/8/2007 9:27 AM (GMT -6)   
Rangerdawg75..First off, God Bless you for your service to our country. Secondly, if you want to talk to someone who's gone through this my fiancee would be more than happy to talk...he's made it his mission to help others that are facing what he had to go through. He had to have emergency surgery to remove his colon just this last December. He has a temporary ostomy and is going to have the J-Pouch next month. He is only 28 years old...unfortunately there are MANY young people out there that have or had this horrible disease and problem. If you want his email, just email me @ and I'll be more than happy to share that with you or anyone else that wants to have someone to talk to. Take care of yourself and I hope to hear from you soon.
God Bless!
Fiancee (best friend & soul mate) Diagnosed with UC November 05
Had emergency surgery to remove his colon Dec 6, 2006 at Cleveland Clinic, (in Ohio) that saved his life! (Thanks Dr. Church!) Going to have the J-Pouch March 7th.
Remicade and Imuran (75mg 2x/day), Iron & Protonix Asacol, 2  4 (as of 5/15/06) pills 3x a day, Probiotics 1x day, Blood Pressure Meds 2x day.
"Life is not measured by the number of
breathes we take, but by the moments that
take our breath away."      - Unknown

Phyllis B
Regular Member

Date Joined Feb 2006
Total Posts : 196
   Posted 2/8/2007 3:08 PM (GMT -6)   

Hi RangerDawg

If you go to the ostomies site, you will find a threaqd entitled total colectomy....there are already 13 partts and if you start at the beginning there is a wealth of information....It was just an off chance that I saw your post....please go onto Total colectomy Part 13 and we can correspond as well as you can join this wonderful group.  I had a total colectomy for colon inertia in June 2006 at Cleveland Clinic...It was done laparascopically..will answer any questions you may have.



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