My name is chip and i'm a new ileostomy patient. 2 weeks ago I was dx with appendicitis and had to have my appendix taken out. what we knew at the time was that i have had ulcerative colitis for 2 years and was on high dose steriods for those 2 years. well long story short, when we talked to the surgeon about having my surgery, it turned into an open insicsion with removal of my ascending and part of my transverse colon. the surgeon nor docs had any idea that it would even happen until he saw the amount of infection in my peritoneum, we were anticipating a laproscopic proceedure to remove my appendix but in order to save my life he had to remove part of the colon and make an ileostomy. I very greatful to be alive, given a poor recovery prognosis of 50/50 survival from the amount of infection present in the peritoneum (he figures that my appendix ruptured about a week before i presented with pain and classic symptoms, and the reason why he figures that is due to the immunosupressive effects of the steriods, supressing the imflamation, pain, and fever). anyway my question is how much has an ileostomy changed your life? i went from worrying about having to be close to a bathroom anytime we went out during flares of my UC to now being on "auto pilot" and eating foods i couldnt eat before with UC. has the ileostomy been a blessing for you or a hinderance?? the surgery was only 2 weeks ago and i'm still trying to get used to the idea of having the ileostomy there.
I would greatly appreciate any input from you guys.
Pancolitis since May of 2005, Primary Sclerosing Cholangitis since April of 2006, and Deep Vein Thrombosis November 2006. I'm a new daddy, new hubby, and new state within the last 10 months.
40mg tapered prednisone, 10mg lexapro, Illeostomy, 50 mg atenolol.
Knowlege is key to defeating these diseases, you are your best patient advocate.