If you still have your colon, why did you get a j-pouch?
Have you tried calmoseptine or Ilex for your sore butt? It's true that most pouchers say the discomfort goes away in time. I never had sore butt problems with my surgery so I canot relate. Others say that eating Metamucil wafers helps too. It took a full year for my pouch to adapt and act like a colon. That wasn't a full year of misery but of small steps of improvement along the way. I have had my pouch for six years now and I still see improvement!
Go to www.j-pouch.org
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free