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San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 2/25/2007 8:51 PM (GMT -7)   
Hi,I am logging in under a new name.It used to be walking scared.I got a new computer,and had to get a new log in name.I am now logged in under (cous).I am having problems with my stoma and need some advice and help if some one can give it to me.I have been having a lot of problems with air building up in my bag,but not gas.I also have been having mucus and liquid filling up my bag.My stoma nurse is on vacation for two weeks,and her replacement does not anything about my history and I do not feel comfortable talking to her.Are my problems something that I should be concerned about,or is it normal.I had a permanent colostomy that was done June of last year.My stoma is also tilted in on one side and does not stand up like it did the first couple of months.I feel like something is not right.
 
                                                 cous confused

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 2/25/2007 11:47 PM (GMT -7)   
Though I now have an ileostomy, I had a colostomy for 15 years. Don't wait for the nurse if you have concerns. Call the doctor!! That's why he makes all that money. However, my stoma changed over time due to the healing process. 15 years later it prolapsed due to Crohn's. You don't say what caused the need for an ostomy. If it was Crohn's I can assure you it doesn't come back that fast, if at all. Your large intestine  releases mucus and it's perfectly normal to have some in the pouch. Are you in any pain? Remember, you recently went through a very traumatic experience which I'm sure you never want to repeat. So that's why your afraid that something has gone wrong. Everything sounds pretty normal to me. But, once again. I would suggest you speak to your doctor to make sure all is well.

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 2/26/2007 11:20 AM (GMT -7)   
Hi San's: sorry you're having problems. I know how it is to get somewhat attached to your ostomy nurse - pretty personal relationship :) but I agree with Vette Guy, if you're worried don't sit around worrying for 2 weeks, call your doctor and at least speak with his nurse! Better yet, call your surgeon's nurse.

San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 3/1/2007 3:48 PM (GMT -7)   
Thanks for your response,
  You asked why I had to have my colostomoy.I had something called Stress Fecal Incontinence.The dotor said that it was not that common,unless someone has had a stressful life.That I have had since 1966.It was one thing after another.At the end,before I had my colostomy done,I was having a hard time controling my bowels and my gas.I had to see many of doctors and have many of test done.All of the doctors that I saw played around for about three years,before something was done about it.I would not have it turned around for all of the love in the world.My husband has finaly accepted it,so we can not get on with our life. :-)
   As far as my nurse goes,that is a different story.I live in West Virginia,and my colostomy doctor and nurse are way down in Baltimore.It is about an hour and half drive,to get there.I really did not want my surgery done way down there,because of this problem,but he was the specialist that they my one doctor wanted me to see.I am also in touch with a ostomy nurse at the hospital not far from me.Her and my regular stoma nurse are supposed to be exchanging paper work,to that I can be seen by the stoma nurse closest to me.I talked to my regular stoma nurse Monday,and she was supposed to have faxed the paper work over to the other stoma nurse Tuesday,but here it is Thursday,and I have not heard anything from anyone yet.If I don't hear by Monday,I will one of the nursed again.I can not continue wearing the wrong wafer much longer.It is hurting my stoma and it messing up my skin under the wafer.I have to change it everyday,and I know that is not a good thing to do.
                                                                   Thanks for your response
                                                                        Sans sad

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/3/2007 1:40 AM (GMT -7)   
San's-Let us know how things work out. Remember, you're not in this alone!!!

San's
Regular Member


Date Joined Feb 2007
Total Posts : 79
   Posted 3/7/2007 3:13 PM (GMT -7)   

Hi Everyone,

   I went to my regular stoma nurse yesterday,3/6/07, down in Baltimore MD. and explained to her in person and showed her what was going on with me.She cleaned me up and we talked as she was doing it.She asked if I have ever used the Eakin Seal,I told her no.She put one on me,as well as the Convetax wafer that has the flexability to move around the opening.She said that my stoma changes sizes when I have a bower movement.So the one inch that I was wear,was becoming to tight at times and when my movement was finished it would change size again.So,I am between a one inch and a one and one eighth ince.My stoma gets bigger with a movement and then shrinks back down when my movement is completed.She told to get some Fiber Con and take it three times a day,plus a little bit of prune juice until the Fiber Con gets into my body and starts to work.So far,I have taken three fiber Con pills and my prune juice (this morning) and still,all that is coming out is marbles,and they are still staying with in the wafer ring.I am beginning to wonder now,if she has builted me up so high that my movements will not fall directly into the bags.This is one of the problems I was having before.My stools just sit around my stoma and will not drop into the bag.Is this something that I should address my nurse with,if it continues or is it common for some people that are built up to high?I always make sure that my bag is lubracated really good each time I change bags hoping to stop this problem.I also lubracate the opening in the bag.Am I doing something wrong,or once again,is all of this common?

                                                                     San's confused

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