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Regular Member

Date Joined Nov 2006
Total Posts : 127
   Posted 3/4/2007 8:11 PM (GMT -6)   
My husband and I just returned from the Cleveland Clinic where we met with Dr. JP Ashkar and Dr. Stocchi.  My husband is scheduled for surgery on June 11th to remove his colon after having UC for 33 years.  In preparation for the surgery, we need advice as to what we should plan on having at home and what we should purchase ahead of surgery, are there any websites that will help us prepare and what should we expect to happen the day of surgery and the weeks afterwards.   How long of a recovery time did most of you have before you went back to work.  One last thing, my husband has had trouble with kidney stones and he is very worried that having an ostomie will cause more stones to form.  Has anyone had experience with more kidney stones after surgery? eyes

Regular Member

Date Joined Mar 2007
Total Posts : 21
   Posted 3/13/2007 6:43 PM (GMT -6)   
I'm new to this site as well. I am also scheduled for surgery on April 25th. Good luck to your husband and I wish you and your husband the best. Don't know anything about the kidney stones but how is he handling the news? I am scared myself but know it is the right thing to do.

Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 3/13/2007 7:35 PM (GMT -6)   
confused confused

I too, am new to the site. It seems that a lot of people post here though. I have found some useful info over the last few weeks. Anyway, I wish both of you luck with the surgeries. I have a temp. ileostomy scheduled for 4/20, so I am ahead of you guys.

As for kidney stones, I wouldn't think there would be any impact on the kidneys because the colon is being removed. They filter blood, and removing the colon only leaves less blood for them to filter. Just speculation on my part. I would ask the doctors and make them explain why there is or is not a connection.

You see, one thing I have learned over the years is, unless you have an adequate explanation and understanding of what is going on with your body, the mind tends to work overtime finding things to worry about, or building false understandings of what is going on.

Anyway, good luck to you both....(actually your husband, sorry)

Regular Member

Date Joined Oct 2006
Total Posts : 109
   Posted 3/14/2007 11:50 PM (GMT -6)   
Hi Nancy1.
Sorry to hear your husband will have to go through this. I wish him the best.
The day of surgery.... the op itself will take about 4 hours or a little more. He'll be pretty groggy and kinda out of it the whole day. They will get him up and walking pretty quick after the surgery. He'll have to continue to walk around as much as possible in the days to follow.
During recovery he will have good days and he'll have bad days, this is to be expected. In the end he'll start feeling much better. In my case I had to stay in the hospital for 10 days after the surgery, so he may have the same time as I did. He'll want to start doing more things in about 2 or 3 weeks after surgery. He should be able to return to work in about 6 weeks.
I'm not sure what system you have for ostomy supplies, but he will need ostomy supplies, but I'm sure his ET nurse will take care of that in the begining.
His ET nurse will be going through all the steps with him and provide all kinds of info for you. If there are any specific questions that you have, be sure to ask her.
Here is another excellent board that you can post your questions and concerns on. Everyone there are more than willing to help.

I'm sorry I can't help you with the kidney stone question though.

Good luck to the both of you, and to you jessicapeanut and Glad Bag

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 3/15/2007 7:35 AM (GMT -6)   
"One last thing, my husband has had trouble with kidney stones and he is very worried that having an ostomie will cause more stones to form. Has anyone had experience with more kidney stones after surgery?"

I haven't know many ostomates who have actually had kidney stones but those I do know say that their doctors do say we are more susceptible than the average person since we tend to dehydrate easier than 'bowel intact' people.

Having said that, from the hundreds of ostomates I've spoken to over the years, only a handful have had kidney stones that I know of.

Good luck.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Regular Member

Date Joined Nov 2006
Total Posts : 127
   Posted 3/16/2007 9:37 PM (GMT -6)   
Thank you all for your information.  Yes, my husband is nervous about having surgery but then I remind him that most people are nervous of surgery.  I'm planning to order some samples and have supplies on hand when we return home.  This site and other sites have provided us with a wealth of information.  I would hate to see anyone have this surgery without reading a lot of postings on discussion boards.

Regular Member

Date Joined Jan 2007
Total Posts : 184
   Posted 3/18/2007 11:47 PM (GMT -6)   
Here's a couple of things I truly enjoyed having at the hospital. The first few days I was pretty much in bed except for few short walks a couple times a day. Because showering was really out of the question I bought the following at Walgreens or you can buy them at Cannot be found at CVS:

Comfort Personal Cleansing Shampoo Cap-so I could wash my hair in bed!
Comfort Bath Personal Cleaning Ultra-Thick Washcloths, Disposable -to wash the rest of me but make sure you microwave them so they are not cold.

I also had Wet Ones so I could wash my hands after emptying my ostomy and before eating and so on.


Regular Member

Date Joined Oct 2006
Total Posts : 109
   Posted 3/19/2007 9:40 PM (GMT -6)   
Oooo, the hospital had those 'wash your hair caps' when I was in for surgery. They were great!!!
What a great invention that was!!
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