I had an ileostomy back on Feb 19th. I have had Crohn's Disease for 20 years. My CD issues have always been with constipation. Back in 1984 after having the chicken pox I started with the constipation and my parents had to give me enemas. When I initially was diagnosed with CD I was having diarrhea every 20 minutes or so. All of my flares after that were issues with constipation. In 2005 at the begining of August I had my colonoscopy and this did show that I was getting megacolon. Initially when I was admitted into the hospital on Feb 11 2007 I went in since I was having fevers over 102 and I was on prednisone.
On February 11 they discovered that my ileum was perforating. The following night I was brought into surgery where they did an intestine resection and while in there they found a fistula and removed that and also took my appendix out. I was doing well the first few days post op. Then it was the well you need to poo before being disharged. I went very little so the next day they gave me 2 enemas with little poo. What I did notice in the small amount of poo were some sesame seeds. I thought about it and the last time I had something with sesame seeds was a week and a half prior.
The doctor was hoping that I would pass some more stool since while he was in my abdomen he was amazed at the amount of stool in me. Because there was no luck with passing stool I needed more surgery. On February 19 2007 I went back into surgery. The doctor removed a third of my large intestine since it was so enlarged due to the impacted stool and due to the removal of part of the colon I now have a temporary ileostomy. The doctor is planning on reversing the ileostomy in 6 months.
It frightened me at first and I am still getting use to the fact that I poop in a bag. The pathology came back on the large intestine and it was a darn good thing he removed it. He told me the tissue was necrotic and the walls were so thin due to being overly impacted and it was getting ready to burst.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.