SJ30, Oh yes, there are days when the odour can strip paint off the walls (depending on what I've eaten - garlic, fish and onions are esp good at making really bad odour for me though that doesn't stop me from eating them)! It really can be that bad lol.
The good news is that there are special deodorisers for ostomates you can buy to help stop the odour. However, if you invest in a bottle of 3% hydrogen peroxide, a squirt into your bag every time you empty it does the job just as well (if not better in my opinion) at a quarter of the cost of the deodorisers aimed esp at ostomates.
What your doctors and nurses are probably referring to is that you won't smell whilst going about
your normal day to day living - the bags are odourproof. It's only when you empty there's an odour - but then, even 'bowel intact' people smell when they poop.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!