Question for the girls

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Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 3/19/2007 6:53 PM (GMT -6)   
I am going to have a ileostmy in a few weeks and I was wondering something about the pain of it.  The sew your bottom up and that's bound to hurt.  But I wonder does it hurt as much as the pain after having a baby?  When I had my son I had to have an episotmy, and that HURT, it hurt worse than the actual childbirth, I thought.  Anyway, I was just wodnering if you girls had any input.  Also, since I have had UC my period has been totally crazy, I am hoping that having the surgery will straighten it out, did any of you have that problem?

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 3/22/2007 7:18 AM (GMT -6)   
I can't answer any of your questions since I don't have any kids (only furbabies) and I had my surgery as a kid before I got my period (actually it was one of the reasons I had surgery - the meds I was on, esp pred was delaying puberty for me).

I will tell you that my periods have been fine though. Immediately after surgery, they might remain a little messed up until your body recovers properly but after that they should be fine. However, I'm sure someone here will be able to help you out.

Good luck.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

New Member

Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 9:30 AM (GMT -6)   
hi hon good luck with it all i'v got an ileostomy and pain far less than having crohns which is what i have. so well worth it. my periods vanished for a while after surgery but have come back now and sadly just as heavy as pre surgery (just my age i think at 42)
chip girl

New Member

Date Joined Feb 2007
Total Posts : 5
   Posted 4/8/2007 9:53 AM (GMT -6)   
DEAR CAT. THEY REMOVED MY RECTUM when I had the surgery. yes it did hurt but i knew it would get better. I've had two children since then and had an episotomy with both. The first one was horrible. The second one was not bad all. I had the same doctor for both. go figure. I was in much better shape with my second child. ( I walked everwhere) this might have made a difference? As for the periods. Right after I had my surgery I had a white discharge. this lasted about a week. Then about three months before I had a regular periods. I did have some spotting. I kept a panty shield on for quite awhile. I was also told ( back then) no tampons for at lest three months. the pill also helped make me more regular. I did not want to get pregnant after having this kind of surgery. Both my children were delivered naturally.

Hang in there and lots of happy thoughts coming your way

Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 4/9/2007 10:55 AM (GMT -6)   
Do they really sew the bottom end up when you get an ileostomy? I had been wondering about that. That sounds awful. Mine is scheduled for april 20th. Can someone else who has had one, please confirm?

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/9/2007 6:36 PM (GMT -6)   
I think it is weird that they sew your bottom up too. When I first decided to do this, someone said, you know you have to lose your butthole right? ANd I couldnot for the life of me figure out how you could have your butthole taken out, then I realized it wasn't really taken out, just sewn shut. Boy was I dumb, lol. Thanks Mrz.B for the info.

Regular Member

Date Joined Aug 2003
Total Posts : 335
   Posted 4/17/2007 8:24 AM (GMT -6)   
My rectum was left in when I had my Ileostomy surgery and I wasnt sewn up. But due to the uc that was still active in my rectum it was decided that it was best to get rid of it all together. I had that done 2 years after my first surgery. I am sewn up now and surprisingly I hardly had any discomfort at all after the surgery. I was sitting down with no problems realy soon. When I had my son however and I had to be cut,OUCH that did hurt for a while.

Regular Member

Date Joined Aug 2003
Total Posts : 335
   Posted 4/18/2007 5:45 AM (GMT -6)   
SJ30 said...
This is something that I'm confused about and my boyfriend is very confused about. So they sew up your butt..on the inside or outside? I'm not having my rectum removed so do they just leave everything the way it is?
One doctor says I have UC my new doctor says I have crohns..the reason for my ileostomy is because I have a rectal vaginal fistula...I got it from being cut during child birth. The doctor did a horrible job but of course he's not going to admit to it. It really sucks because I've had 3 surgeries to try to heal the fistula, but with UC its almost impossible to heal..and they say the rectal vaginal fistulas are the hardest to heal. So it just angers me that my UC or crohns is really doing well but because of something that could have been avoided, I am now getting stuck with a bag. If I knew then what I know now, I would have demanded a C section. Its just scary what can happen if doctors are careless.
To be honest I am not too sure but i think that I was sewn up from inside.Strange realy because I usualy ask lots of questions of Doctors but it didnt cross my mind to ask at the time.
If you are not having your rectum removed then I dont think that they would sew you up,it will probably be left just the way it is. Ask your Surgeon before you go for the surgery,exactly what he will be doing.
 Is your ileostomy being done so that the Fistula has a chance to heal?

Veteran Member

Date Joined Jul 2006
Total Posts : 1123
   Posted 4/19/2007 11:51 PM (GMT -6)   

Hi, SJ ... It sounds like your ileo is going to be temporary, give the fistula a chance to rest and heal, and then a reconnect to the natural rectum/anus.  If so ... good luck, go for it!

My colostomy is permanent - both the rectum and anus were removed because of rectal cancer.  The surgeon sewed things together inside, sewed a neat little seam along where the anus used to be, and now I have a nice, pain free, "Barbie Butt."   I sat Very Gently for a month or so - at least till the stitches disolved and the pain gradually went away.  Caution: only sit on flat, firm, surfaces - donut cushions or soft pillows won't give you enough support, they'll actually allow the stitches to droop and be more uncomfortable.

Hope this helps.    :-)   Martha

Regular Member

Date Joined Apr 2005
Total Posts : 78
   Posted 4/20/2007 10:07 PM (GMT -6)   
Okay I'm really confused now. I'm having step 1 of a possible 2 or 3-step surgery done May 10th and my surgeon said that he's going to remove my large intestine and rectum, but from reading these posts from everyone, it sounds like you only get your rectum removed if you have a permanent bag. Am I reading this the wrong way? Please inform me!
17 year old female diagnosed with UC in May 2004..
Only had two 3-month remissions, and all together lost 1 plus years due to flare-ups.
75mg of 6-MP - 12.5 mg of Prednisone - 500mg of Pentasa

*~*Step 1 of a possible 3-step surgery is May 10th*~*

Regular Member

Date Joined Jul 2006
Total Posts : 212
   Posted 4/21/2007 8:52 AM (GMT -6)   
I am having this surgery also. I understood that when the rectum and anus are removed,you do have the bag permanently. Thats fine with me. I am so sick of wearing diapers,I will be glad I won't have a butthole.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/21/2007 9:01 AM (GMT -6)   

For those having surgery and receiving a permanent ileostomy the anal area is sewn shut.  For those having j-pouch surgery, the rectum is removed but the anal muscles are left intact.  A temporary ileostomy is given (if have a 2 or 3 step).  If you are having j-pouch surgery your butt will not be sewn shut.


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/30/2007 10:30 PM (GMT -6)   
Ok I now have the answer to my own question, lol. In case anyone else wonders. An episotomy hurts 5000 times more than my butt does now! The real problem I have with my bottom is it kind of itches.
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