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New Member

Date Joined Dec 2006
Total Posts : 17
   Posted 3/21/2007 10:34 AM (GMT -6)   
I had a subtotal colectomy feb. 27.  I guess I expected to be feeling pretty normal by now but am not.  I had complications after surgery with my bowels not waking up and ended up staying 10 days and had to have a ng tube wich was the grossest thing i have ever had!  I am having bad intestinal cramps.  is this normal??  Also I was under the impression that I would be in the bathroom 5-10 times a day but yesterday i did not go at all and I think that is the reason for the cramps.  Not sure what warrants a call to the Dr.
Anyone have similar experience?? This is really starting to depress me.  It seems that this will never be over and I will never be the same.

Veteran Member

Date Joined Feb 2006
Total Posts : 629
   Posted 3/22/2007 6:53 AM (GMT -6)   
mwabit said...
I had complications after surgery with my bowels not waking up and ended up staying 10 days and had to have a ng tube wich was the grossest thing i have ever had! I am having bad intestinal cramps. is this normal?? .

i had those things happen to me after my ileostomy, so i would say that's normal. my cramps were brutal for about 3 weeks after the surgery.

as for the other things, can't help you there! good luck

Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

Angel Baby
Regular Member

Date Joined Mar 2006
Total Posts : 50
   Posted 3/22/2007 11:44 PM (GMT -6)   

Dear mwabit:  yeah

On 09/20/2005, I had a subtotal colostomy with two port holes on each side of my hips and an ostomy bag.  Let me tell you I had serious complications after my 9 1/2 hr surgery; by midnight when my husband and daughter left me; I was in dire trouble.  I needed a blood transfusion ASAP.  I had no one with me except a very passionate young female nurse, who knew my case and a Physician's Assistant telling me if I don't get the transfusion, I would die that night.  While in massive pain and had morphine pump I called my husband to return with my daughter, because I felt I would die.  He said let them do the blood transfusion and we will see you in the morning.  Around 1:30 a.m. the blood transfusion was done.  By 6:30 a.m. I was filling up with blood internally, blood clots growing as fast as the interns and residents were talking, nothing was done until my surgeon came into the room and said I want blood work STAT.  Next thing I know I looked like a sumo wrestler, couldnot see the whites of my eyes, I was feeling up with blood so fast that God was right in front of me with the door wide open and the bright light to follow him.  I was rushed to surgery ASAP and cut open from my chest down to my belly button.  The scar resembles a snake with a head.  The blood clots gathered around my kidneys in which I had four more blood transfusions and another 7 1/2 hr surgery.  I knew if I survived I would have a long road ahead of me to recover.  I had the ostomy bag along with a TPN system for three months and it was horrible.  I did everything myself along with a weekly visit from the home VNAs to check for any infections and change my bandages.  Everything I ate filled my ostomy bag faster than you could shake a stick so to say.  There were a list of foods that were not recommended to eat during that time frame, but drink plenty of protein drinks, water, gatorade, etc. When they reversed my ostomy and removed my TPN system on 12/20/05, the rest of my life was up to me.  Watch what I ate, experimenting with foods that bothered my small intestine while the small intestine was still learning how to take over the duty and responsibilities of the removed large intestine.  Certain foods made me stay close to the bathroom such as chinese, mexican, fried, dairy products, etc.  As time went on they no longer effected my body as they did before.  A year and a half later, I still experience no warnings when I have to go to the bathroom.  Even if I try to pass gas, watch out, and be close to a bathroom.  If I know I have to be somewhere for a long period of time, I just don't eat until I return home.To answer your question, I used to go to the bathroom 10 to 20 times a day. I took Lomotil a few times a day and it slowed it down.  I also watched what I ate.  Now I am lucky to go 2 - 3 times a day depending on what I eat.  But I feel 100 percent better than I did before the surgeries.  I might get tired faster, but it was well work every ounce of pain and suffering.  Good Luck to you and stay positive.

New Member

Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 9:14 AM (GMT -6)   
i'm the other way, i can't stay OUT of the bathroom post op. I'd advise calling your doc and asking for advice
chip girl x
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