I dont know what to tell you about
the fistula at your rectum when I was in surgery they found a fistula linking my small bowel to another section of small bowel so while in there they took that out as well as my appendix. At that time I only had a resection. I wasnt feeling right so 1 week later (February 19th), so yes I am new to all of this as well, the doctor went back in drained a 500 cc abscess as well as removed a third of my colon since it was so impacted with stool and enemas prior to the Sx werent helping enough. At the end of the week he informed me that he was going away on vacation and one of his assoc would be caring for me while he was away. I had yet another abscess so they drained that by way of CT scan. The following day they gave me an ultrasound since the output from the drain was minimal they were looking to see if the drain was up against the intestine wall etc, after they looked at the ultrasound they didnt see much so yes another CT scan which revealed there was little left there so they pulled the drain and the radiologist aspirated 5cc of fluid that was left there.
I am in fact noticing more and more that my pouch is active more at night either that or I just think that since I have to wake up each time. I do however notice I have more gas at night time than during the day. Make sure you are drinking more than you did prior to the surgery because you lose a lot more fluid with the ileostomy since your colon absorbs about
99% of fluid therefore keeping you hydrated.
I dont think there is a way to control your output but maybe I am mistaken. When it is active overnight is it all watery or is the consistancy that of yogurt? I tend to skip breakfast since when I wake up (except the last few days I have been taking in more sodium to help retain fluid) I feel awful. AS the day goes on I feel better. For lunch I eat canned pasta, mashed potatoes, ramen noodles, regular pasta which I always add mozzerella to the sauce or soup. At dinner time I may have some of the items I eat at lunch but occasionally I will have chicken pot pie (21g of protein), meat tortellini (22 grams of protein in that), and lately I have been craving burger king so I have had that a couple of times since the surgery. Make sure you are getting lots of protein since that will aid in the healing process. also you may want to take zinc supplements they also aid in healing I have CD not UC but CD depletes your body of zinc and I am unsure if UC does that as well.
My stoma area is still very tender as well however I am hooked up to a wound vac since my incision became infected. The infection is gone but this vac speeds up the healing process as well. When the visiting nurse comes to change my wound vac dressing she also changes my ostomy flange and bag since they are so close to each other that they overlap. This intensifies my pain around the stoma. I actually take dilauded 1 hour prior to her coming and I also take 2 oxycontin a day and the doc has me on nerve meds to help with the pain assoc with the dressing changes of my wound vac. I am concerned that when I am allowed to return to work that my stoma will be bumped many times (I work as a veterinary assistant).
My doctor wants to wait 6 months before reversing my ileostomy I just hope I wont have as many complications as I did when I had my last surgeries done.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.