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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 3/24/2007 11:35 AM (GMT -7)   
Hello all I was just wondering how much additional fluid I should be taking in due to the ileostomy.  I tend to be filling my brita fridge pitcher 2 to 3 times a day.  Also I have been drinking tea, orange juice and lemonade.  My stools are finally forming up a bit but I hope that I am still drinking enough.  I have noticed that if I have more sodium at night I wake up feeling better than I have before.  I wonder if this was due to losing so much fluid overnight.  I noticed this occurance the other day on thursday for dinner I wanted burger king so on the way home from the colorectal surgeon's office we stopped in and got dinner.  I had 2 burgers, no pickles and a king size french fry.  On Friday morning I felt much better than I had I even went so far as making cornbread for breakfast. 
 
Prior to my sodium at night I woke up dizzy, stumbling and felt like vomiting.  I also noticed I could barely see my veins (they are hard enough to see when I am hydrated).  I would heat some water up in the microwave and while that was heating I would go empty my pouch.  When the water was done I would make decaf tea.  I also filled up my water bottle took my meds and would lay down even fall asleep until noonish.  Then I would still feel awful but after taking in the tea and some water I had enough strength to make ramen or open a can of chef boyardee.  Like I said beofre as the day progrerssed I would feel better.

Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 3/26/2007 3:13 AM (GMT -7)   
i would say i drink about 6-8 liters of liquids a day. that's about 1.5-2 gallons for you Americans :) heck i've had over a liter already and i've only been awake for 30mins...once i get back to work and start to sweat, i imagine i'll have to drink quite a bit more.

remember that by the time you feel thirsty, you're already well dehydrated. i don't eat any additional salt, never have.

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

Post Edited (awesomeame) : 3/26/2007 4:17:59 AM (GMT-6)


Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 3/26/2007 7:41 AM (GMT -7)   
i try to drink around 2 litres of water a day and ive always put salt on my dinners and i feel fine but i still get really tired around the afternoon because im still post-op

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 3/26/2007 9:50 PM (GMT -7)   
They say ileostomates should drink at least 2 - 3 litres of water a day. I never have but I've never really suffered from dehydration that much anyway. I know others who have to drink a lot more than that to stay hydrated (once again, everyone's body is different).

Ileostomates, especially, should NEVER skimp on salt during their meals. Since salt is absorbed by the large intestine, ileostomates need much more salt to compensate for what they lose (we tend to lose about a teaspoonful a day in output). I've even had salt cravings to the point where I've poured salt into my hand and licked it up.

I always know when I'm low on salts and potassium - I tend to get excruciating leg cramps in the calves of my legs.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


chip
New Member


Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 6:46 AM (GMT -7)   
I;ve had problems with a high output stoma but its only six weeks old. docs so concerned i'm now on ING electrolite drink 2 litres a day and one litre of free fluids. Anyone else have this.?? doc says i'll have to do this for rest of life. tried 16 immodium a day but that hasn't thickened output. still emptying up to 12 times a day with over 2 litre runny output. driving me potty!!!
chipgirl

Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 3/31/2007 7:55 AM (GMT -7)   
I'm 66 years old. Had my ileostomy last October and had some psychological issues. I think I have overcome them now. With regard to liquids, I drink a lot of Gatorade. A lot. I eat sensibly and feel better than I have in years.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/3/2007 5:04 PM (GMT -7)   
I have just gotten back from my 3rd stay in the hospital with complications from everything. I now in addition to the ileostomy and wound vac have a drain from an huge abscess on my right side. This pain due to the drain is horrible. I am drinking plenty of fluids. The doctor has me taking 2 imodium in the morning and a metamucil capsule at night to help bulk up everything. I have also found when I eat mashed potatoes my stool thickens a lot and very fast.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


papasgirl
Regular Member


Date Joined Apr 2007
Total Posts : 44
   Posted 4/12/2007 6:44 PM (GMT -7)   
i was told by my ileostomy nurse that i needed to drink atleast 3 liters of water a day.and she also told me to increase my sodium because with the ileostomy it was processing too fast for me to get the sodium and i was dropping my blood pressure. you may want to check your pressure and see if it is low :-)

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 4/13/2007 2:09 PM (GMT -7)   
Here's what I was told: at least 64 oz of Gator Aid a day not "free" or plain water as it washes the sodium right out of you! I also try and eat soda crackers not only for the sodium but to firm things up a little. Coffee and colas are diuretics and you'll loose fluids faster if you drink them. Gator Aide has sodium in it and will help keep your electrolytes from getting depleted. Gator Aid X is much tastier than the regular stuff in my opinion!!
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