hi new ileostomist here

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New Member

Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 8:43 AM (GMT -6)   
been trying to find chat rooms for ostomists and this appears to be the only one????? Any advice for a new ostomist appreciated - i'm 42 with crohns and love the ilio compared to living with diarrheoa before that. Any other ostomist living in Bristol or south west??? look forward to chatting with you  all
chip girl tongue

Regular Member

Date Joined Mar 2007
Total Posts : 33
   Posted 3/27/2007 11:06 AM (GMT -6)   
Hiya chipgirl, im 17 and had the ileostomy 3-4 weeks ago. I used to have UC and i hate having a stoma but it is better than sprinting to the loo all the time. Im from the south west. Glad your getting on with ur ileostomy :) just keep your head up high and think the best :) looking forward to chatting with you 2.

Take care


Regular Member

Date Joined Oct 2006
Total Posts : 109
   Posted 3/27/2007 5:59 PM (GMT -6)   
Hi Chip
Welcome to the board. This is a great board with lots of folks here to help.
Here is another board well worth checking out, lots of great people there to help as well.

Regular Member

Date Joined Nov 2005
Total Posts : 39
   Posted 3/30/2007 9:00 PM (GMT -6)   
hi all,

7 weeks ago I had my ileostomy put in due to UC and a ruptured appendix. Over the last few weeks I have noticed little things that have helped me. I came to the conclusion a while back when I couldnt get my UC under control that an ileostomy/colostomy would be in my future at one point, but when I had the appendectomy the surgeon didnt anticipate the rupture and the amount of necrotic tissue in my acending colon and transverse as well as part of my ileum. steroids hid the symptoms for a week they figure, until I went into septic shock. my surgeon and I went into surgery thinking we could have a quick laproscopic appendectomy but once he saw what he was up against he had to "open me up". I woke up with an ileostomy (which we didnt anticipate). I still to this day get a little tender but the pain does subside. around the 4 week mark after surgery I was able to go from laying to seated in bed without discomfort. my stoma itself does not hurt but i do get a little tender to the right of my stoma. I have had problems with the wafer staying put but i found that an ileostomy belt in conjuntion with smith-nephew skin prep, and holisters paste has extended the "life" of the wafer, i was only getting about 36 hours before the belt, now i get atleast 4 days out of the wafer. I also bought mastisol which is a good bandage adhesive and that has helped when I have needed it. I was told by a holister rep not to use 3m's cavilon as it can reduce the effectiveness of the adhesive. The home health nurse told me that tinture of benzoin is pretty effective as well. If you havent already, i strongly suggest having a care package when you go out. I took my old back pack and have a pre cut wafer connected to the collection bag and all the things I require to change, as well as a change of clothes in my car.

I have noticed that my output is very watery following a meal, but it does become more formed after. As for odor, I put about 1 tbsp of hydrogen peroxide and it takes care of odor very effectivly. leaking is going to happen, its par for the course but it seems to get better over time. this seems to be a blessing in disguise as opposed to being stuck on alot of meds and running for the commode. Now I dont even think about having to plan my outings and making sure there are restrooms around. Good luck and if you have any questions, dont hesitate to ask.

-- the original chip [:-)~
Pancolitis since May of 2005, Primary Sclerosing Cholangitis since April of 2006, and Deep Vein Thrombosis November 2006.  I'm a new daddy, new hubby, and new state within the last 10 months.
40mg tapered prednisone, 10mg lexapro, Illeostomy, 50 mg atenolol. 
Knowlege is key to defeating these diseases, you are your best patient advocate.

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 3/31/2007 1:07 AM (GMT -6)   
Congrats on the surgery and welcome to your new life! Just like anything new it might seem a bit foreign to you. Give yourself some time to adapt to it both physically and emotionally. After 18 years my ostomy is as natural a part of me as  my fingers and toes.

Veteran Member

Date Joined Feb 2006
Total Posts : 629
   Posted 4/2/2007 7:14 PM (GMT -6)   
hiya chip & welcome! you will love your new life! i'm 4 months post op now, still healing myself! on the weekend i went on a date with a nice chickie, saw a concert, and i've been bar hopping today all afternoon! having this condition won't slow you down one bit, you'll be amazed how much MORE you'll be able to do now :) seeya around

Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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