7 weeks ago I had my ileostomy put in due to UC and a ruptured appendix. Over the last few weeks I have noticed little things that have helped me. I came to the conclusion a while back when I couldnt get my UC under control that an ileostomy/colostomy would be in my future at one point, but when I had the appendectomy the surgeon didnt anticipate the rupture and the amount of necrotic tissue in my acending colon and transverse as well as part of my ileum. steroids hid the symptoms for a week they figure, until I went into septic shock. my surgeon and I went into surgery thinking we could have a quick laproscopic appendectomy but once he saw what he was up against he had to "
open me up". I woke up with an ileostomy (which we didnt anticipate). I still to this day get a little tender but the pain does subside. around the 4 week mark after surgery I was able to go from laying to seated in bed without discomfort. my stoma itself does not hurt but i do get a little tender to the right of my stoma. I have had problems with the wafer staying put but i found that an ileostomy belt in conjuntion with smith-nephew skin prep, and holisters paste has extended the "life" of the wafer, i was only getting about
36 hours before the belt, now i get atleast 4 days out of the wafer. I also bought mastisol which is a good bandage adhesive and that has helped when I have needed it. I was told by a holister rep not to use 3m's cavilon as it can reduce the effectiveness of the adhesive. The home health nurse told me that tinture of benzoin is pretty effective as well. If you havent already, i strongly suggest having a care package when you go out. I took my old back pack and have a pre cut wafer connected to the collection bag and all the things I require to change, as well as a change of clothes in my car.
I have noticed that my output is very watery following a meal, but it does become more formed after. As for odor, I put about
1 tbsp of hydrogen peroxide and it takes care of odor very effectivly. leaking is going to happen, its par for the course but it seems to get better over time. this seems to be a blessing in disguise as opposed to being stuck on alot of meds and running for the commode. Now I dont even think about
having to plan my outings and making sure there are restrooms around. Good luck and if you have any questions, dont hesitate to ask.
-- the original chip [
Pancolitis since May of 2005
, Primary Sclerosing Cholangitis since April of 2006
, and Deep Vein Thrombosis November 2006. I'm a new daddy, new hubby, and new state within the last 10 months.
Knowlege is key to defeating these diseases, you are your best patient advocate.