I saw your post and maybe, because it is old, you have probably been sorted now. but if not, you havent had an MRI scan, which is the only test which really shows whats going on, as other scans can miss things. hope that helps, but if you are fine, then great. karen
I'm so thankful I found this forum, as I've had ostomies very much on my mind lately. I apologize in advance for the length of this but I need some advice and want to get as much detail as I can out there.
I have dealt with constipation essentially since childhood, though I never saw a dr. When I was 13 I suddenly started having truly terrible pains that I felt first in my back but would rotate into my sternum. They would last for 4-5 hours and there was nothing I could do or position to assume to calm it down. They lasted for nearly two years keeping me up all night appx 4 days a week
about a year ago when I got married and got insurance I finally went to a doctor for the constipation. He ordered Colace, which didn't do anything. I took that, milk of magnesia, prune and prune juice....etc.
In July I went to my new dr who thought my gallbladder felt funny but didn't follow up on it until one morning in august I looked jaundiced. I hadn't moved my bowels in a month so I bypassed my PCP and went to a gastroenetologist, who found complete rectal prolapse and reffered me to a surgeon.
He ordered a barrage of tests before deciding which surgery would be the right one. These were the results:
*Celiac (tested twice) was negative
*stool sample was normal
*Thryoid was normal
*BUN, WBC and RBC normal
*Liver fxn normal
*Gastric Emptying exam.....bad. showed marked delay. I was diagnosed with Gastroparesis
*Small Bowel Transit....somewhat slow but was told it wasn't slow enough to merit medical attn
*Sitzmarker.....surprisingly normal. No colonic Inertia
*CT scan........biliary colic with many gallstones
*Video Defecography....massive rectal prolapse, rectocele and enterocele.
On Halloween I had a sigmoid resection/rectopexy, an open-abdominal enterocele repair and a cholecystectomy. The surgeon also described my peritoneal connective tissue as being "pediatric".
then an MRI found blood clots in my portal vein and put me on a 6 month regiment of coumadin. I got a blood test to see why I clotted and high levels of anticardiolipin antiobodies were found. They then tested me for autoimmune disorders (lupus, for example) but everything else had normal levels
THEN (lol....sorry) I started having excruciating rectal pain and a return in constipation. My gastroenterologist put me on zelnorm in addition to the reglan I was already on for the gastroparesis. She also presribed miralax which I take daily.
Still none of the above has helped, and the rectal pain is getting more severe with a return in prolapse. I spend between 3 and 4 hours daily on the toilet. (At home I now keep my laptop and a portable dvd player in there!) Maybe it's related to the stress of it all, but I've also started losing hair, and suddenly have acne and terribly oily skin. I also have had severe fatigue (almost narcolepsy really) since I began college.
The surgeon said I am not a candidate for biofeedback therapy because my pelvic muscles function fine, and said I should consider a colostomy if I'm in such pain.
which FINALLY brings me to my question. without having an obvious disorder....is this an overly aggressive approach? I am only 22 years old, and I am a fitness competitor so otherwise I'm in fantastic physical shape with a clean diet. it seems as though I should have an actual physiological merit of a colostomy.
any thoughts? (sorry about the length once again!)