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New Member

Date Joined Apr 2007
Total Posts : 2
   Posted 4/20/2007 4:56 PM (GMT -6)   
I have had my ileostomy on Sept 27th and after 8 weeks, i returned to work full time. My question is why am I so tired? I have had blood work and its all normal. I have to empty my bag about 7-8 times per day. Yes, I have lomotil, but that doesn't really work? Any suggestions? Also, If  you are away from home - other than tooilet paper- how do yu clean inside the cuff? confused

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 4/20/2007 10:25 PM (GMT -6)   
Have you had your Vitamin B12 levels tested recently? A lot of people with short gut find that regular injections of B12 help their energy levels tremendously.

Also whether at home or away, I only use toilet paper to clean the end of my bag. Just a quick wipe on the end to clean it, I roll it up, stick the velcro together and I'm good to go. :)

Good luck.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 4/21/2007 8:45 PM (GMT -6)   
I have found those flushable wipes work well to clean the cuff even yucks pads but they are more costly. I take flushable wipes with me when I go out. At home I have a separate trash in the bathroom with a lid and I use grocery bags to line it since I found it even cheaper to use baby wipes, but had to find a place to throw them since you cannot flush them. My cats are good for going in trash but they stay clear of that one. I have yet to return to work since my surgery was just in February and I had any complications and being a vet tech is a physical job so I need more time out than if I had a desk job.

I find my stool is watery a lot my surgeon has me take 3 immodium a day total. Also i find if I eat mashed potatoes (instant or real) within an hour or 2 the consistancy is much thicker sometimes even tough to get out of the bag.

Also you mention away from home and no TP? no bathrooms have it outside your home...sry a little confused there.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.

Veteran Member

Date Joined Feb 2006
Total Posts : 629
   Posted 4/23/2007 4:36 PM (GMT -6)   
i have one of those little bottles that m9 comes in that i carry with me when i leave the house. after you dump, give a little squirt around the top, dump it again and use some toilet paper to dry the area. seems to work great

Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

Regular Member

Date Joined Aug 2003
Total Posts : 335
   Posted 4/23/2007 4:51 PM (GMT -6)   
Are you drinking enough water to replace all that you are losing from the stoma?Dehydration could make you feel tired.

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