I am also a new ostomate. My ileostomy is temporary since mine was due to emergency surgery (2 actually). I have had Crohn's diesease for 20 years with no prior CD related surgeries until Februalry 2007. I went into the hospital and a CT revealed my ileum was perforated. The following day after having me on IV antibiotics ( I was running a fever of 102-104 F) they did a resection. Within a week I ended up with toxic megacolon and that is why I have this ostomy now.
I had many complications with my surgeries as well, wound infection and 2 abdominal abscesses one of whichI still have a drain in. I have a wound vac on the wound and it is healing great! I was readmitted 2 times after I was discharged the 1st time. That was due to the abscesses.
I have had the ostomy since Feb. 19th and yes at 1st I had lots of gas overnight. I also have had 2 times overnight where my ostomy leaked. The main reason why mine is doing that is because of the wound vac being a little over 1 inch to the left of the stoma. My drain is about
2 inches to the right of my stoma. The visiting nurses come 3 times a week to change my dressing for the wound vac and my flange. The reason they change my ostomy suppies is that it overlaps the dressing for the wound vac. If the wound vac is turrned on and the suction occurs then the flange is placed I tend to have leaking issues. I currently use the flanges with the tape edge once that is on then the vac is turned on and the tape is sucked into every little nook and cranny making a better seal. I am unable to change my own flange at this time as well since when pulling the flange off also pulls the vac dressing off.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.