I see the surgeon Monday...

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Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 4/28/2007 8:58 PM (GMT -6)   
Monday is the big day for me....finally.  I surely hope she is going to give me a date for surgery, this is my first visit with her.  All my other docs have told me I need to have the surgery, including 2 gi docs.  Do you think it's possible she will say "no"? 
I am so nervous and really want to get this overwith.  I took all your advice about what to have on hand after the surgery and am well prepared in that way, anyway!
If you have any questions I need to ask her please tell me, I don't want to mess this visit up.  My hubby is going with me.
Thanks!  BTW-it is recommended to have the total colectomy.
Michelle ><>
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Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 4/28/2007 11:55 PM (GMT -6)   
Ask her to put your in touch with a Stoma Nurse BEFORE surgery.

Your surgeon can tell you the mechanics of putting the Ostomy together but your stoma nurse is going to be your lifeline before and after surgery.

Your stoma nurse will watch you standing, walking, take into consideration the clothes you wear and will mark the best place for your stoma accordingly. If possible, as the nurse for some sample bags before surgery and wear them (maybe filled with applesauce or similar) to get a 'feel' for what to expect afterwards.

Also, before signing the consent forms, make sure you write into it that AFTER the swelling goes down, you want your stoma to be at least 1 - 2 inches long. Too many surgeons make stomas flush to the skin thinking they look better but don't think of the problems the patient will have with it afterwards. A stoma that pokes out will output stool into the bag easier than a flush stoma, where stool can seep under the wafer and often necessitate a wafer with convexity. A stoma that sticks out won't guarantee that stool won't get under the wafer (it probably will at times) but there is less chance of it happening than with a flush stoma.

Good luck.

I have had an ileostomy for 31 years now due to UC.
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Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/30/2007 10:05 PM (GMT -6)   
I was terrified that the dr would tell me no too, lol.
I say take a couple of pair of pants to your "fitting' I took the pair I wear most often, and my fav pair, and tried them both on for her. Just to make sure it was in a good place. Mine is to the right of my belly button a little bit and below it a little bit.
A nurse is coming to my house right now, although she is kind of weird, lol. But I think that most drs order at home care for the first weeks. The lady that is the ET nurse at the hospital where I had my surgery is super nice and she has called to check on me and there is usually on call all the time. Check about that.
I had my surgery on tuesday and left on Monday, I think I stayed alittle longer than usual though, because I had to have some blood and for some reason Sat night I got this random fever, so they decided to keep me.

vette guy
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Date Joined Nov 2006
Total Posts : 650
   Posted 5/1/2007 1:27 AM (GMT -6)   
Everyone above has great suggestions. Here's one that will be helpful for after your surgery:
Make a list of all the things that your illness has either prevented you from doing, or has prevented you from enjoying what you like to do. Don't think too hard...just write them down quickly. After you've recovered ,try to do the things that your illness has impacted. I'll give you an example. Before my surgery I always wanted to go hot air ballooning. Talk about being as far away from a bathroom as possible.  That was one of the first things I did after my surgery. I'm sure you can think of similar things that you've wanted to do but were afraid to try.
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