I am new to all of this too however mine was an emergency surgery. I have had Crohn's disease for 20 years now. The 1st surgery I had was Feb 11 they took out part of my ileum and did an internal resection. The following week I went from great to bed ridden again so 1 week later they went back in (after more CT scans and bloodwork and enemas). On Feb 19th They went in drained 400cc of an abscess, saw I had toxic megacolon removed 1/3 of my colon and I got a temp ileostomy. I hate how I look right now but that probably has to do with an infected insicion, thanks to a dumb resident getting feces in my incision and just dabbing the poo away even after I asked her if it needed to be flushed. I was going to get the vac off yesterday my Dr on tuesday said I could but when I got home I flushed my abscess drain and it came out of my stoma and my incision. I also have a drain in as you probably figured from my last statement. The abscess came back again after Surgery a couple of times. When my Dr was on vacation another Dr took my case until he returned. They did the whole drain thing and since nothing much was coming out the day after it was placed they did another CT saw there was nothing there so they pulled it. Needless to say this thing wont go away. So when I look in the mirror I have the wound vac dressing with the flange overlapping then about
an inch to the right of the ostomy is the drain with a liter sized bag pinned to my shirt. I wish I felt as good as you do I still have a fentenyl pain patch and dilauded for break through pain which I have needed a lot the past couple of days since the abscess is draining double than it had the last 2 weeks. They think there might be a fistula feeding the abscess so CT scan for me again tomorrow fever is coming back too even tho I am on a hefty dose of augmentin
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.