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Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/30/2007 10:43 PM (GMT -6)   
So after posting forever not really belonging here, I am now an offical ostomate!  WOO HOO! 
I had my surgery 4-17 and got home last Monday, but didn't really feel much like getting on the computer till today.  Surgery went well, but when I woke up I was so upset I couldn't believe what I had done and I hated it.  They put this clear bag on me and it was really gross, and the nurses and CNAs were emptying it for me, becaue they had to keep up with how much and they would empty it into a container and then just set the container anywhere and I had to look at it, yuck, lol.  Anyway, once I got home and got into the non see trhough bag it was better, until I saw my self naked for the first time.  I was so upset.  I got down to 122, I never thought I woould be upset about being too thin, lol.  So there I was all skeletony, staples all down my middle, brusies everywher from IVs and that bag hanging off me, I just cried and cried.  I was having alot of trouble with gas, and then I got where I was eating regulary and that stopped.  Anyway, I still was having trouble with it, but then something great happened, I sat through a whole movie withough having to go to the bathroom!  So, I got a little better feeling about it.  Then I drank a milkshake, still feeling a little better about.  Then today, something wonderful happened ( most people would find this dumb, but alot of you have had UC or something similar and will understand) I went on a car trip and DID NOT worry about where a bathroom was!  Then on the way home, I stopped and got some fries and ate them in the car, even though I knew we might get stuck in traffic and there might not be a batrhoom, and I drank another milkshake, also in the car!  I haven't had  a milkshake in probably 5 or 6 years.  And I haven't been able to go on a car trip or eat in a car without worrying about a bathroom for 8 years.  So now, even though I am still kind of grossed out when I have to clean it, I don't think I am doing it right, lol.  That today made me realize I did make the right decdsion!
I want to say that you guys have been super helpful and i hope that now that I actually belong I can be as helpful to other people as you have to me!

Regular Member

Date Joined Jul 2006
Total Posts : 212
   Posted 5/1/2007 10:11 AM (GMT -6)   
Yes,thanks for posting your experience! I am having my surgery next Monday,so I would like to hear all I can,bad or good. Scrappyjrt

Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 5/1/2007 1:09 PM (GMT -6)   
God's speed to all of you having surgery or just recovering. :)
Michelle ><>
Co-Moderator MS forum

Ever stop to think, and forget to start again???

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 5/3/2007 3:36 PM (GMT -6)   
Well I didn't actuallly GO to the movies, sorry about the misunderstanding, I watched one on the couch, lol. But even that was something i could have never done before! I am still not doing alot, but every day it's a little more.
SJ30, I had my surgery on a Tues, then Wed I was on clear diet, like broth and jello, but I care for neither so I just didn't eat. I think that on Friday I was eating Mashed Potatoes and Pudding. Then when I came home I was on a "low residue" diet and will be for 4 more weeks. But that's pretty much everything but veggies and fruits and grains. Which kind of sucks cause veggies and fruits were what I really wanted!
But I am eating other stuff, like yesterday a cheeseburger and fries, and no upset tummy! WOO HOO!
Good luck to everybody in their surgeries, and thanks to everyone for replying.

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 5/3/2007 4:35 PM (GMT -6)   
I am new to all of this too however mine was an emergency surgery. I have had Crohn's disease for 20 years now. The 1st surgery I had was Feb 11 they took out part of my ileum and did an internal resection. The following week I went from great to bed ridden again so 1 week later they went back in (after more CT scans and bloodwork and enemas). On Feb 19th They went in drained 400cc of an abscess, saw I had toxic megacolon removed 1/3 of my colon and I got a temp ileostomy. I hate how I look right now but that probably has to do with an infected insicion, thanks to a dumb resident getting feces in my incision and just dabbing the poo away even after I asked her if it needed to be flushed. I was going to get the vac off yesterday my Dr on tuesday said I could but when I got home I flushed my abscess drain and it came out of my stoma and my incision. I also have a drain in as you probably figured from my last statement. The abscess came back again after Surgery a couple of times. When my Dr was on vacation another Dr took my case until he returned. They did the whole drain thing and since nothing much was coming out the day after it was placed they did another CT saw there was nothing there so they pulled it. Needless to say this thing wont go away. So when I look in the mirror I have the wound vac dressing with the flange overlapping then about an inch to the right of the ostomy is the drain with a liter sized bag pinned to my shirt. I wish I felt as good as you do I still have a fentenyl pain patch and dilauded for break through pain which I have needed a lot the past couple of days since the abscess is draining double than it had the last 2 weeks. They think there might be a fistula feeding the abscess so CT scan for me again tomorrow fever is coming back too even tho I am on a hefty dose of augmentin
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 5/4/2007 2:39 PM (GMT -6)   
Oh dear what a time you are having! I hope it clears up soon!

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 5/4/2007 11:01 PM (GMT -6)   
Cattieos, it sounds like you're discovering life again, congratulations :) It's amazing how a surgery that so many dread, can actually make such a difference to us and give us our life back, isn't it?
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 5/4/2007 11:34 PM (GMT -6)   
Yes it is, makes me wish I had done it the day I first got sick!
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