Total colectomy Part 15

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Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 5/1/2007 5:54 AM (GMT -7)   
Hi Everyone
 
Seems we got locked out of 14...
 
Hi Michelle.
Good luck friday...we all will be thinking good thoughts for you...

tyblossom
Regular Member


Date Joined Apr 2007
Total Posts : 27
   Posted 5/1/2007 9:10 AM (GMT -7)   
I thought that's what was wrong when I tried to reply to Michelle...it was giving me a whole new thread rather than reply..ack :-)
 
Does anyone who's had this surgery have a time line as to when they ate what after surgery? Clear liquids, then creamy liquids, soft diet, normal diet....is anyone still having problems with certain foods like 6 weeks later or longer?
 
 
 
Michelle-Hey my surgery is Friday too. I'm starting my prep today because we're driving to Ohio which is a 6 hour drive. So prep today with soft or liquid foods today and tomorrow. Then another prep Thursday when I'm in the hotel. Are you having an open or lapriscopic? What state are you in? I'm getting nervous....hate leaving my kids too...
 
Stephanie

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/1/2007 11:07 AM (GMT -7)   
Hi Stephanie,
I live in Mississippi.  Mine will be "open" surgery due to previous abd. surgeries.  What are you having and how long did the doc tell you to expect to stay, mine said 7-10 days. With the MS I tend to have a prolonged recovery.
 
 My doc told me to eat light tomorrow, soft and liquids then Thurs. before I"m admitted that day for prep just clear liquids.  I'm eating very light today with lots of liquids.
 
You'll be in my prayers.    I'm blessed that I only have a 20 minute drive to the hospital.  God's speed to you.
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



tyblossom
Regular Member


Date Joined Apr 2007
Total Posts : 27
   Posted 5/1/2007 4:42 PM (GMT -7)   
Hi Michelle,

Mine too will be open. He did say he might start it lapriscopically because I had adhesion surgery with him and he wants to see how that worked. I think he might also try and start it that way to see if he could do it that way but doesn't want to get my hopes up. He said hospital 7-10 too. I don't know if I'll need to stay in the area though...depends on how I feel to be in a car etc probably. Good Luck with your surgery too....I'll try and have my hubby post for an update after. Let us know soon how your doing too.

Stephanie

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 5/5/2007 7:25 AM (GMT -7)   

:-)  Hi everyone!!  I've been unable to post for several days, been sick with a bad bout of bronchitis sad !!  I've really missed chatting with all of you.

MICHELLE & STEPHANIE - I'm so sorry I wasn't here to encourage and comfort you prior to surgery.  I look forward to your return.  May God bless and keep you during and after surgery!!

ADVISESEEKER - Nice to see you post again - I remember you :-) !!  I too, after agressive treatment with a load of medications, found NO relief either.  I was never able to take the Duloclax due to the extreme cramping it gave me.  I used Exlax, extra strength, also in a very large doses (48 pills in a three day span).  Eventually, along with all the other meds, NOTHING worked for at least 6/8 months prior to surgery and I was absolutely miserable and also very sick.

My stool was very hard as well (this will sound gross).  The ONLY thing I could do was  manually remove the stool from my rectum.  It would be extremely large and hard as a rock, not to mention, very painful!!  This was a lifetime problem for me (43 years) and I felt I had no other choice but the surgery.  I finally confronted my surgeon concerning ALL the medications and how they were actually making me feel worse, NOT better.  He advised that he had to take the route of the medications first for the insurance company to approve and pay for the surgery (these insurance companies are something else).  Finally the insurance company approved the surgery and I had it three weeks after approval.

I can and will tell you that this was the best decision I've ever made in my life.  Immediate post-op recovery is definitely something no one can prepare you for, we can only give our actual experience.  This is a VERY HUGE surgery, so my advise is to seek as much information as possible and discuss it with your surgeon. 

Regaining a life I never had is nothing short of a miracle for me.  Yes, the surgery and recovery process is a long process, but in order to have a life, I had no other choice and I would do it again without hesitation!!!

Hope this helps.


Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 5/5/2007 6:56 PM (GMT -7)   
Hi Everyone,

ROBIN - I was wondering where you were. I'm sorry to hear you had been sick with bronchitis. I hope it is gone.

ADVICESEEKER - I hope your surgery goes well and that you feel much better real soon. I will keep you in my prayers.

Everyone else who is having surgery this week my prayers also go out to you. I wish you all a quick recovery.

I couldn't take laxatives. Some didn't work, some gave me severe cramps and others made me so sick. The one that made me the most sick was Milk of Mag. It made me throw up and so dizzy. I took a lot of over-the-counter medications but none worked. The health food people made a bundle of money off me. I also took Zelnorm and Amatise, both didn't work for me either.

I really didn't have trouble with my HMO approving the surgery. They let my surgeon decided my care and treatment. My surgeon was the first person who listened to me. My problem for the past 20+ years was getting a doctor to listen and recognize there was a problem beyond your normal constipation. My HMO covered you might say the total cost. My share was so minimal I had to keep asking "is this all I pay for everything". I wanted to be sure. I am so grateful I found my surgeon. But it was God's timing not my own. This surgeon has given me back my life.

Last week was my first week back to work. I didn't tell many people I was leaving and only two of those I did tell what kind of surgery I was having. When I went to work on Monday most of the people thought I had weight reduction surgery. They were amazed at how much weight I lost. Others were speculating that I had beast reduction surgery. If I had that I would have told my co-workers.

I hope everyone is doing good.

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 5/7/2007 6:39 AM (GMT -7)   
:-)  Hi Resa, I am feeling better, thanks for asking, however, I'm still dealing with the bronchitis and have to return to my primary physician AGAIN on Thurday to see if the bronchitis is clearing up a little better than it did last week.
 
So, how was your first week back to work?  Did you find it tiring?  Did you feel comfortable having several bm's a day?  I'm glad you're regaining your life!!
 
You know Resa, you're absolutely 100% correct that it was God's timing and not ours.  Like you said, every doctor would dismiss it as though constipation isn't a big deal.  If I had a dollar for every time I was told to "eat more fiber"- "take fiber supplements" - "drink more water" - "try stool softeners" - the list goes on and on, I'd have A LOT of money!
 
I too am so thankful that my GI referred me to my colorectal surgeon.  After doing every possible test to finally confirm Colonic Inertia was a blessing - I finally had a NAME for my condition.  After taking Zelnorm and Amitiza at the same time, along with Miralax three times a day with no relieve, the surgeon really pushed the insurance to cover the surgery.
 
So how much weight have you lost to date?  My final number was 25 pounds, however, since my appetitie returned, eight pounds has too nono !!!!!  Isn't it amazing how people feel the need they "must" speculate as to why you were out of work?  Just let them think what they want - if you wanted them to know, you surely would have told them LOL!!!!!
 
I hope everyone else is doing good!!  Please keep us posted!!!


Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/8/2007 6:27 PM (GMT -7)   
Hi All,
I tried to post earlier and it had an error messeage. I am still in the hospital from surgery last Friday. I am feeling horrid. Severe pain and horrible nausea. I started passing liqiud stool early this morning. It's hard to get to the restroom in time, I don't have a normal urge to go just some gurgling. I had an ng tube until today, they clamped it off yest. to see if I could tolerate getting it out and seemed to be about the same..not really worst. Anyway, it came out today. The zofran isn't helping that much and the phenergan just knocks me out, I'm on dilaudid for pain pump.

How many had severe nausea? Any recommendations to help? I'm loosing hope. I haven't eaten since last Wed. and today was my first day on clear liquids, all i had was 2 bites jello, 2 spoons broth and a couple sips of iced tea. The doc tonight suggested sipping on hot tea. Please let me hear from you guys, I need you all so much right now and value all your recomendations. Thanks again.
BTW..surgery went well, it was open and she said my colon was enlarged and distended.
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Jillibean
Regular Member


Date Joined Mar 2007
Total Posts : 24
   Posted 5/9/2007 1:04 PM (GMT -7)   
Shelleypoo,
You poor thing. I didn't have the nausea like you are having. Can't they give you something for nausea? My only advice is to get off that pain pump and onto oral meds and out of the hospital as soon as you can. I felt sooooooooo much better, the minute I got home. I don't know what else to say, except that you should make a big stink to your doctors about how you are feeling.

Well, although I am still very pleased with the surgery, and enjoy having 4-6 bms per day, I sure seem to have a few setbacks. The partial lung collapse was really a bummer, so everyone early in recovery, use your breathing apparatus or breathe deep breaths and cough a few times every hour! And recently, I ended up in the hospital, again! I had a partial bowel (sm. intestine) obstruction, or thickening, due to scar tissue, I think. At the same time, I had a hemmorage from a ovarian cyst. It was very painful, and I basically hollered for 5 hours until they got me on a dilauded pain pump. I was basically out of it for 24 hours, until I got a severe headache from the dilauded. I got off that, onto Percocett, and got the h e double toothpicks out of there as soon as I could. I think hospitals are just a place of torture, at this point, as I have NEVER received proper pain management in the hospital. I should call the press and make a stink, but I am too tired.
Now, I am leary of doing anything, as my tummy hurts, and I don't want to end up back in the hospital again for anything.
I will see my doctor on Thursday, and he can explain why my tummy still hurts so much.
Anyway, did anyone have trouble with scar tissue causing pain or obstruction after surgery?

I am sorry to vent, but I know you ladies are here for each of us, and I am surely comforted by that fact.

I would still do the surgery again, as I am no longer in terrible pain, and toxic, and the plumbing is working great!
Jill smurf
Jill

For that which does not kill me makes me stronger.
-My Mom-
It is good for you to be in uncomfortable situations.
-My Dad-
I am thankful every day for this surgery!
-Me-


resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 5/9/2007 6:49 PM (GMT -7)   
Hi Everyone,
Shellypoo - I can't really help you with the neasea because for this surgery I had a very mild case. They treated it with meds. It went away by noon the first day post-op. For breathing I used my breathing applicance and coughed after each breathe. I also used surgical boots for two days to help prevent blood clots.

I didn't really like the liquid diet so I didn't eat. Eating it made me feel sick so I left it. My surgeon said I didn't have to eat it because I was getting nurishment from the IV fluids. So he told me not to let the nurses try to make me eat it. By the third day he discontinued the IV fluids and put me on soft foods.

My pain was managed very well. I didn't like the morophine pump. My belly was sore but not that sore. My pain complaint was the gas pain which the morophine didn't work on. So I felt no need to use it so they discontinued it and gave me Vicodin. Walking really helped the pain go away. The nurses were in my room it seemed like every hour checking my urine output, my drain output, checking to see if I was using my breathing appliance, etc.

ADVICESEEKER - I went to two different facilities for tests. My Sitzmarker test showed all rings still in my colon from the cecum to the rectum. My surgeon at my HMO stated I had to meet a certain criteria before they would do the surgery so he did more tests. I asked if we could remove only the worse part of my colon but he said they always take the whole colon because they found the person would end up back in the hospital to remove the rest in a year or two.

After surgery my surgeon sent my colon to a toxicologist who is specialized in the digestive tract. My surgeon told me my colon had major nerve damage throughout and places where the muscle had stretched out to create thin spots in the colon. He said I was the perfect candidate for this surgery.

From my personal experience, I did Colonics, which I believe is hydrotherapy and it did NOTHING. It was great each time I had a treatment but it did not Fix the Problem. Even my Colonic Therapist made me stop and wouldn't do any more treatments because it wasn't Fixing the Problem.

I think if you are a candidate for surgery to have the surgery should be your decision. But it is a major surgery and great thought should be given to it. When I was presented with the option of surgery from the first surgeon he made me go home and think about it for six months. In that time, I did extensive research, read all these posts from all these wonderful people, and made my decision. When I made my decision, I decided to go through my HMO. The surgery is Elective and yes, it was my decision, but as I stated I did have to meet a certain criteria. Maybe your insurance carrier has certain criteria before a doctor can do this surgery for Colonic Inertia. My care and treatment for my condition was left up to my surgeon. He felt I needed it and that I would benefit from it so we went for it.

Age - I am not sure why they want you to wait until you get older. How long have you suffered? I had this for a total of 22 years and it never got better for me - only worse and worse and worse.

I hope I have made some sense and that I did help some.

Everyone else I hope you continue to improve with each day.

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 5/9/2007 8:42 PM (GMT -7)   
Hi to all,
 
First I'd like to offer good thoughts and prayers for those of you that have recently undergone or are getting ready to undergo surgery. All of you seem like wonderful people that are fighting the same battle.
 
I'll give you a bit of background first. I have had a LOT of surgeries in my lifetime...the colectomy will be number 35. Most of my surgeries were due to breast cancer at 37 and 10 knee surgeries (all open). The others were gallbladder, total hysterectomy, inguinal hernia, femoral hernia, and three lymph node removals from my neck. I've had a total of five abdominal/pelvic surgeries for ovarian remnant syndrome. That's where your ovary grows back (Yes, you're reading that correctly) after it has been removed. Two years ago I had a partial colectomy due to severe diverticular disease with bladder fissures. My problem started after that surgery. Before that, I had normal BMs.
 
I have tried the obvious fiber supplements plus Zelnorm and Amitizia; none worked. I've also tried senna products to no avail. The only thing that will work is a double or triple dose of MOM, and that takes about 18 hours before anything happens. Of course there is also the magnesium citrate that will work, but we all know those aren't the best things to use.
 
I recently had a Sitz marker test and 19 were present at the end of the study. The only reason I lost 5 was from eating some bad Chinese food one night. LOL  Anyway, my GI has said that my best bet is a total colectomy and he has spoken to two surgeons (one at Stanford and one at UC Davis). They want me to have a colonoscopy first. This is scheduled for the 21st and will have to be done with Propofol because of a tortuous colon. They want to make sure there are no strictures. I just had a colonoscopy about a year ago that showed the anastomosis to be fine, but I did have four precancerous polyps.
 
I'm wondering how much time I'll need off from work for this surgery?  I understand that it's about 7-10 days in the hospital, but I'm unsure how much time after that. I work at a doctor's office doing coding/billing/transcription, so it's not a strenuous job.
 
I look forward to getting to know all of you better.
 
Terri
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post partial colectomy, now diagnosed with colonic inertia with total colectomy in the near future.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/10/2007 5:23 AM (GMT -7)   
My heart hurts for all of you in pain.  I am still in the hosptial.  yest was a very bad day, I was quite dehydrated (even though on drip) and no urine out put.  They increased my fluids and ran some tests...oh how I pray my kidneys are not damamged.
 
I cannot eat the clear liquids they make me more nauseous and even though I'm not eating i'm still going to the toilet 4-5 times during the night and day, it is killing me.
 
I hope today is a better day for all of us. :-)
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 5/10/2007 7:20 PM (GMT -7)   
Boy, there's so many posts to try and address, all with great questions and concerns.  I'll try real hard to help and encourage those with questions in anyway I possibly can.
 
SHELLYPOO - Hi Michelle, my heartfelt thoughts are with you.  I'm so sorry to hear of the issues you're now going thru.
 
As I've stated several times here, NOTHING can prepare you for the immediate post-op suffering part of this surgery.  We can only share our stories and help others who are having some issues.  I know it sounds like the impossible, however, please know that you will feel better in a few short weeks - once things begin to adjust. 
 
The only part of nausea that I had a hard time dealing with was immediately after surgery due to the anesthesia (which has always been an issue with me after past surgeries).  In recovery they gave me several medications, which I think phenergan was one of them (this is a very strong medication that cancer patients use) and it didn't work unfortunately.  I was finally told that I couldn't have anymore medications - I was at my limit, so I basically started doing deep breathing and eventually that seemed to help some.
 
The pain for me was bearable (I have a high tolerance to pain).  In fact, they removed the morphine pump the following morning (I wasn't using it much) and started me on a pill form of pain medication (which was pretty strong stuff - Percocett - which was the ONLY medication that did ease the pain).
 
It is a very good sign that you've had your first bm!!  At first they will be very liquid, so don't be alarmed.  At first I didn't really have the "urge" either, but rest assured, that will be something you'll regain.
 
I can understand your feelings of "loosing" hope, HOWEVER, time is of the essence here and soon you WILL begin to feel much better.  I'm SO excited to hear that your surgery went well - that's a BLESSING!!!!!  I wish you the best and hope with all my heart that your pain, nausea, and fears will soon be a thing of the past!!!!
 
I wish I could offer more help, but hope something here encourages you!!
 
JILLIBEAN - Jill, I know from experience the discomfort of the belly being in pain, sore, and very tender.  I know it was a good 12 plus weeks for mine to improve.  You sure did have some set backs and I hope they are all behind you now!!  I too would have this surgery again without hesitation.
 
ADVISESEEKER - Please don't let the doctor doing the anorectal test discourage you in anyway!!  I know of people in their late teens and early twenties who've had this surgery, it isn't an age thing in my opinion, rather a fight for survival and regaining your life.  As far as it being "who's decision" - It was MY decision and the surgeon agreed with my decision.  I've also read that some insurance companies consider this as elective, yet others do not.
 
You cannot continue living the life you're living - that's NO life at all!!  I would demand the surgeon to take the steps to get this surgery approved and performed as soon as possible - DON'T give up and DON'T give in!!!!!  This surgery is what I consider REGAINING a life instead of existing, especially when the quality of life you should have is something you deserve!!!!!!
 
RESA - Great advise for those seeking it!!  Your experience and sharing it is well appreciated by those going thru this right now.  Thanks for helping others with your own experiences, the good and the bad!!  It's just all a part of this surgery and recovery process.  There is nothing easy about this surgery - it's HUGE - however, you and I, and so many others would have this surgery over without a second thought!!!
 
IRISH_MOM - Terri, nice to meet you and welcome!!!  Yes, there are some wonderful people here and I'm so thankful for each one and thakful they're a part of my life.  They've ALL helped me thru this process in more ways than I can count.  Boy, you sure have been thru SO MANY surgeries - WOW!!!  We all have been thru the vigorous cycle of ALL the medications which is past the point of helping, yet these doctors EXPECT us to continue on with this cycle!!
 
Each person is different in their healing process, some take more time than others.  It wouldn't be a fair statement to give a definitive "return" to your normal activities, even the return to work.
 
I hope this helps those in search for the answers they need.  Forgive me if I have typo's, I've typed quite a bit and after a while things seem to blur together.
 
God bless and keep each and every one of you!!
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


Jillibean
Regular Member


Date Joined Mar 2007
Total Posts : 24
   Posted 5/11/2007 6:04 AM (GMT -7)   
yeah Robin,
I agree with all the encouragement that you have given to everyone. You are so faithful to all of us, and I really appreciate you!

I agree that it is no life to live with severe constipation. For me, my colon was just a huge, stretched out, non-functional organ, which I call the "dehydration chamber". As my general physician said, "death begins in the colon". It is life threatening to have a colon stop working. A person needs to be able to move their bowels. We do not need a colon to survive, and I can't stress enough how much healthier I am, without mine!

My 21 year old daughter, now has Diverticulum in her colon. She is using Metamucil and a stool softner to improve her situation, and my 17 year old daughter, has some constipation issues as well. We are pushing fiber around here, and they will both be on Metamucil for the rest of their lives. I just hope they don't have the problems that I have had. We really need to watch the diets of our families, and push drinking water and exercise, for sure. That's not to say that colon problems are our fault, just that to do anything and everything to help our families to have a healthy colon, is the way to go!

I am feeling better the past two days, thank you, God. Thanks for reminding me, Robin, that it took time until your tummy felt better. I am only about eight weeks out, so I guess it could take another month to be great. I am definately looking forward to that.

Take care all, you are in my prayers.
Jill

For that which does not kill me makes me stronger.
-My Mom-
It is good for you to be in uncomfortable situations.
-My Dad-
I am thankful every day for this surgery!
-Me-


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/11/2007 6:09 AM (GMT -7)   
Still here in hospital but yest. was a better day.  I found out all labs were good..so no kidney damage.  I am going so often though it is trying my patience, and about half the time I don't make it to the loo in time.  My hubby has been here most of the time, and I am so grateful, i couldn't do it w/o him here.
 
I insisted on soft foods instead of liquids, they are allowing me that.  i had a few bites of /kfc mashed potatoes and then some applesauce. t all travels so fast....I went every hour at night, I think I'm going to have to try the depends at night.  Any suggestins?  I have looked at them and don't know which are more comfortable. 
 
 
I am not taking any pain meds, I think the diaidid was making me more nuaseous.  I'll ask about advil.  Are there any meds/foods I should avoid right now?  How will I drink all the water I need when I'm off the drip without spending the day in the loo (literally)
 
thanks in advance for all you help.
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Jillibean
Regular Member


Date Joined Mar 2007
Total Posts : 24
   Posted 5/11/2007 6:54 AM (GMT -7)   
Shelleypoo, so glad to hear you are better!!! I wore the depends which were like, "pullups" all the time in the hospital, and for about a week after that. I couldn't run to the bathroom with the iv and everything, so it helped a lot. You will be fine, once you get home. Most of your absorbtion will take place in the small intestine, so you should drink a normal amount of water, 6-8 glasses per day. Since that heavy colon wont be resting on your bladder any more, you shouldn't need to run to the bathroom a lot. Probably less than before.
Do take pain meds if you need them. You don't need to live in lots of pain. I used Percocett for a couple of days, and then went to Tramadol, a non-narcotic pain med. Advil and Tylenol, alternating is good, as is just Aleve, alone.
Jill

For that which does not kill me makes me stronger.
-My Mom-
It is good for you to be in uncomfortable situations.
-My Dad-
I am thankful every day for this surgery!
-Me-


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/12/2007 5:53 AM (GMT -7)   
Advice***I'm so glad you have an appt.! Yes, the defogram is not pleasant.  When I did the clean out for this surgery a little over a week ago, the barium from the defogram finally came out...it had been a month!
 
I may be able to go home tonight or tomorrow.  yeah They will pull my central line out today, so I will be free of every contrapment but will have no access in case of emergency.  I can only eat small bites of food but then my stomach hurts because it is hungry 2 hours later.  I am trying to drink my water but my stomach is so swollen I feel like a stuffed sausage!
 
I cannot wait to get home!!  I am still having some pain but I have so many weird affects from pain meds..feeling wired etc.. that i hate to take them.  The doc said I can take advil.
 
 
My dear hubby went to buy me some depends and came back with diapers that have tabs on the sides....they are awful.  as soon as I can he will have to get the other kind that pull-up.  He didn't see those kind at Walmart.
 
Thanks again for all your thoughts/prayers.  I will update you when I can.
 
 
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 5/12/2007 6:13 AM (GMT -7)   
Hi Everyone
 
For those who have just had surgery and are poohing a lot.  Just remember that the small intestine has to adjust to having to do some water resorption.  This may take a while.  Also you will be able to control when you have to go and the number of times each day will go down.  After my surgery I was going 20X/day (not good for sleeping).  Now I am done to 8 and if it stays that way I will be happy it is far better than not going.
So give yourself plenty of time and remember it takes anyone about a year to fully recover from major major surgery.
Happy Mother's day
Take care

tyblossom
Regular Member


Date Joined Apr 2007
Total Posts : 27
   Posted 5/12/2007 8:20 AM (GMT -7)   
Well I'm out of the hospital and can post. The hospital's wireless didn't work with Vista. I got out yesterday and am in a hotel till Monday afternoon and then get my staples out and drive home to north of Chicago. We're in Cinn Ohio and had a terrible situation where two planes collided just above our hotel yesterday after we checked in. Too sad and scary that close.
 
So a quick story. I started my prep the Tuesday before surgery and then nothing on Wed the day we drove down and more prep on Thursday. Surgery Friday morning. Woke up with an epideral and felt wonderful....0 pain. Was fine till the next day when the epideral came out and I felt pain which took a while to bring the pain down and I then had the pump. My Ng tube was supposed to be left in, but I can remember coming out of surgery and them saying to bring me back in. I guess I some how coughed it up or something. I don't think I pulled it out. I was given pepsid right after surgery and throughout the 7 days in the hospital. I was also given Reglan to get my colon to wake up. I chewed gum probably the day after surgery which also I believe helped a great deal with dry mouth and to motivate my colon. My doctor per my request took a picture of my colon....gross, but interesting. I had 10" left of colon and 4" was used to reattach me. Not sure exactly how that works, but that's what he told hubby. I'm using vit e oil from wallgreens on scar. I took my first shower when we got to the hotel yesterday. Worst part is the gas pains for me. From right out of surgery to still now. Especially when getting out of bed. Hubby luckily stayed with me on a cot all the time as I was able to get a private room. I totally can't imagine doing it without him. I'd get to the side of the bed and have such a sharp pain on the lower right side. Now it moves and sometimes I'm ok when I'm walking around. I'd love to hear others about this pain and does it go away? As for eating....I started liquids on tuesday and wed soft foods and doc said anything is fine now, but I know better from these boards. It's soft for me for a while. I'm eating soups and yogurt, eggs and some soft breads.
 
Oh and I had thought my surgeon was just a general surgeon, but he actually is a colon surgeon. It's just that he does other things too. His big specialty and the reason I chose him was that he is one of the only docs in the US that specialize in adhesions with a glue that is natural and once you have surgery he sprays your insides with this glue that your body digests over about 20 days. By then the adhesions are less likely to grow back. This I believe is the reason I got this problem after a big stomach surgery I had in 2004. Because adhesions grew around my colon too much to work.
 
 
If I think of anything else I went through that might help others I'll post more. I'm really swollen, but really am at a point I thought I'd be at weeks down the road. So I'm happy so far. This is a rough surgery though....I had some just blah icky I hurt days last week. Oh and I gained 10 pounds and have hardly eaten anything in the last week and a half and my colon weighed 10-15lbs he said. They pumped me with too much IV fluid I think...so hopefully that will go down in the weeks to come.
 
 
Stephanie

tyblossom
Regular Member


Date Joined Apr 2007
Total Posts : 27
   Posted 5/12/2007 8:22 AM (GMT -7)   
Oh one more thing. I don't run to the bathroom or have leakage. I'm sure tha'ts because of the 10" he left. I do need to use the bathroom within like 3-5 min of the feeling to go.

Stephanie

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 5/12/2007 8:48 AM (GMT -7)   
:-)  Good morning and HAPPY MOTHER'S DAY to all the moms!!!
 
JILLIBEAN - Thank you for the compliment!!  I feel so lead to stay here and help and/or encourage those in need.  I'm so blessed that I've made such wonderful friends here and hope to continue these friendships!!
 
I'm so sorry to hear that both of your daughters are dealing with colon issues sad !  I know this is hard on you to see them suffer, especially since we know the suffering they're going thru. 
 
What a blessing to hear you're feeling better with each passing day.  Yes, you may continue being sore and tender for several more weeks, just know - it does improve and that's when you will begin to feel even better!!
 
SHELLYPOO - How wonderful to hear all labs are good and you're feeling better by the day!!  It will take time for your body to get "accustomed" to not having the colon and everything being moved thru the small intestine.  Right now it's hard to see the future, however, it WILL GET better and things WILL SLOW down.  I was very fortunate that I didn't have to use the depends and was able to make it to the toilet just in time.
 
Nice to hear you were able to eat and tolerate the soft foods.  You will find that "soft" foods will be your main diet for the next several weeks.  For me personally, I had to avoid red meat and dairy for the first two months.  You will notice with time that your body will tolerate more foods and before you know it, you'll be able to eat more of a variety (also, your appetite will improve too) yeah !!  I think it's awesome that you're able to deal with the pain without all the stronger drugs.  You will feel much better when you get home - there is NO place like home!!  Just remember that this is a long process and some days will be better than others.  So, don't get discouraged if/when that happens.  Our bodies have been thru a HUGE surgery. 
 
I'm sure you're very thankful for the support of your husband -that is a blessing to say the least!!!
 
ADVISESEEKER - You're not alone by feeling you've been thru the most embarrassing tests in your life.  I felt the very same way and was thankful they were done and over with when I finished.  I looked at it as "swallowing" my pride in order to find out my diagnoses.  I guess I was also born with a "slow transit" colon, as I've said before, I had this problem for 43 years and I'm so thankful for the total colectomy surgery - a surgery that has give me a new lease on life!!!
 
I wish you all the luck Monday with your appointment with the surgeon.  I know you would like for them to make the decision for you, however, you have to make this decision.  I can understand your fears, believe me, all of us here have faced these fears.  It's a matter of deciding if you can live life as you do now - or regaining a life you haven't had in a long time (or in my situation - a life I never had, so the decision to have the surgery for me wasn't too drastic OR too soon).
 
This is a HUGE surgery and recovery is long.  There is nothing we can say to prepare you for the immediate post-op, only give you our story, advise, and encouragement and see you thru the first couple of months post-op!!
 
I will tell you that I would have this surgery again tomorrow if I had to.  It was worth EVERY discomfort and many trials I went thru in order to receive "LIFE"!!!!
 
PHYLLIS - Thank you for your well given advise on the struggles you went thru going so many times a day right after surgery.  You've give hope to those who are having the same issues you had.  You're a jewel!!
 
I hope everyone else is doing good - we would love to hear from those who haven't posted in a while.  I hope everyone's Mother's Day is special and full of love!!!
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 5/12/2007 9:04 AM (GMT -7)   
TYBLOSSOM - We must have been posting at the same time, so I didn't get to address you in that post!!
 
I'm so happy to hear you're out of the hospital on in route to home in a few days.  I find your post very encouraging and thank you for sharing with us, especially for those about to face the decision to have this surgery.
 
It sounds as though you took the advise of many here with you to the hospital.  There is a lot of good advise here, a blessing to say the least!!
 
Keep us posted on your trip home and of course when you get home in your own bed and in your own environment.
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 5/12/2007 11:35 AM (GMT -7)   
Yea Stephanie...we both made it!  I am home today!  I thought it would be longer but this morning I felt about as good as I was going to feel in the hospital so the doc said "ok".  They pulled my central line and I'm home.
 
I'm just taling advil for pain.  Oral pain meds don't do much for me.  I had noodles with one piece of amer. cheese melted on them for lunch and it was good.  I have lost about 7 lbs. so far but while I was in the hospital I weighed and had gained 6 lbs.  so I imagine I'm still carrying extra fluids.  My belly is quite swollen.
 
I look forward to a good nights sleep.  Oh, btw, my surgeon said I don't have to avoid delayed release drugs, she said that your stomach and small intestine do the absorbing.
 
I have to call the surgeon Monday to get my appt. to have all my staples removed.
 
Take care.  Happy Mother's Day.
Michelle ><>
Co-Moderator MS forum
 

Ever stop to think, and forget to start again???



Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 5/12/2007 1:10 PM (GMT -7)   
Stuck/Robin
Thanks for the welcome. I'm so happy that I found this group. My heart goes out to the folks here that aren't helped with MOM. That's my Friday cocktail each week. I do a double dose and it usually starts working by Saturday night. Right now I'm dealing with another attack of diverticulitis. I was fine at work on Thursday and then after lunch started feeling funny, i.e., chills. Took temp and it was 103. Labwork all out of whack. Had a CT which showed the diverticulitis, so now I'm on injection antibiotics until my colonoscopy on the 21st. My poor butt is going to look like a pin cushion. The one thing that was exciting was that I got some diarrhea on Friday. It's either from the shots or because I overloaded on cherries on Monday. The doctor I work for is also a farmer and his brother has been bringing us buckets of bing cherries. Monday night I ate a lot of them, so that may have been what loosened things up. I'm going to try eating them again to see, but I think it's wishful thinking on my part.
 
ShellyPoo
I was excited to hear that you're finally home. I think that we can heal better/faster at home than in a hospital. Take it easy and don't over do it.
 
Tyblossom/Stephanie
Is the hotel that you're in close to the hospital where you had your surgery? I know that a lot of the hospitals in our area send patients to nearby hotels/motels when they live far away. That glue sounds amazing! I sometimes wonder if adhesions are part of my problem since I've had so many abdominal and pelvic surgeries. However, since this problem didn't start until I had a partial colectomy, I'm thinking that had something to do with it more than anything else. Did you ever find yourself trying to talk yourself out of having the surgery done?
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post partial colectomy, now diagnosed with colonic inertia with total colectomy in the near future.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


Jillibean
Regular Member


Date Joined Mar 2007
Total Posts : 24
   Posted 5/12/2007 11:28 PM (GMT -7)   
Adviceseeker,
My constipation was nowhere near what yours sounds like. Nowhere near. And I had the total colectomy. I understand your concerns, however, I cannot imagine why you would even consider going on like you are with having one bowel movement per month. Do you know how bad that is for you? You could die from that. Not to mention how toxic your body is. And I think cancer could come of having rotting stool inside of us for so long, but that hasn't been proven yet.
The surgeon will not force you to have this surgery. You will have to decide when enough is enough for you.
Don't have it done if you are so alarmed. Read our past threads to find out the most information that is available for anyone considering this operation, and then decide. You know what is the right thing for you. You are smart, and very well informed.
yeah
Jill

For that which does not kill me makes me stronger.
-My Mom-
It is good for you to be in uncomfortable situations.
-My Dad-
I am thankful every day for this surgery!
-Me-

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