I'M GOING TO TRY AND ADDRESS AS MANY QUESTIONS AS I POSSIBLE CAN - I MAY OR MAY NOT KNOW ALL THE ANSWERES BUT WILL TRY MY BEST OK?
ADVISESEEKER - I was told that once the small intestine finally realizes its roll (it takes anywhere from a year to a year and a half for our bodies to heal and get used to it's new way of transit) the amount of bowel movements CAN decrease compared to right after surgery. This may be a question to ask the surgeon for your own personal peace of mind.
I think (as I'm sure others have too) that we get extremely paranoid over the smallest of things....we just don't want to go back to our old non-existent lifestyle.
about the risk of infection...during any procedure there's a risk for ANYTHING. From my own personal experience, antibiotics were given from the very beginning until I was released from the hospital (it's possible I was given some after I left the hospital but it been so long that I can't remember).
IRISH_MOM - The MiraLAX really didn't work for me pre-op either and I was taking it three times a day on top of the Zelnorm, Amitiza, and something else that I can't remember the name of.
I think you will find the Mott's apple juice a good choice. Sugar free candy is another real boost!!
SHELLYPOO - Oh my goodness - my heart goes out to you. If it makes you feel any better, I too caught a stomach bug in the early post-op stage and my entire abdomen region had a lot of cramping, pain, tenderness, and discomfort. My stomach was also distended. I did have bowel movements but very few at that time. Once the "bug" was over I went back to my normal routine. I think it was somewhere in the range of two or three weeks post-op, I was readmitted in the hospital for three days, had two CAT scans (which didn't show anything) and they took a look at where they connected the small intestine to the rectum for a possible blood supply problem - all came back OK.
It's hard to accept these setbacks, but they are possible, as we all can see. I have no doubt that you will regain your strength and begin feeling better very soon. I do wish you the best of luck - keep us posted OK and try not to get too discouraged (easier said than done I know).
NONNA - You're more than welcome!! The MiraLAX pre-op did cause my stomach to swell, however, I was taking the stuff three times a day then. I have noticed that taking it once a day isn't too bad - I can't say I'm happy with the bloating but at least I can pass some gas now which helps a lot.
It sounds like you and I have a very similar situation and I also fear the small intestine being "lazy" as I was told Saturday - I too was readmitted after surgery for three days, had a host of tests ran, and was released with no definitive cause for my pain and discomfort and given stronger pain medications. Thankfully my hospital stay wasn't anywhere close to your experience.
I was also under the impression that I'd never have to have another colonoscopy and the prep WASN'T the Fleet phosa soda thank God!! It was that "gallon" of salty stuff that had to be chugged down by the glass full every ten minutes until gone (the surgeon thought it would only take half the bottle for me - but seeing I'm unusual - it took the whole darn thing).
I did have my entire colon removed and guess it was all except for the rectur. I do not cramp, just a little full and bloated look/feeling which can cause me to hurt (tender) a little. The very same goes for me, that up until about a month and a half ago there was a definite feeling when I needed to have a BM but now it is somewhat supressed. I too began obsessing over it because things moved plenty and wonderfully. Now I really feel blessed with each and every BM I thank GOD for each one! Once or twice a day is far better than before, but three times a day was perfect.
I'm not sure if the small intestine can become paralyzed or even removed, but my surgeon did tell me that if my syptoms do not improve or they worsen, then and only then would he take out the remainder of the colon (he didn't mention anything about having to remove any part of the small intestine).
I've been on Protonx since before my surgery due to an ulcer, but now it's basically for preventitive measures.
I know how easy it is for ALL of us to fret and worry over the smallest of things. We're human and that's only normal. Also, for those who've been thru so much - just the thought of something going wrong increases our anxiety. I hope I was able to address your questions and the best piece of advise I can give you is to call and ask/express your fears with your surgeon.
JULIA506 - I'm happy to hear you're doing as much homework as possible. I'm not real sure, and forgive me if I'm wrong, but I think there is a difference in the purpose/reasons for having a colectomy for Colonic Inertia (paralyzed colon) vs Crohn's Disease.
Maybe there is someone here who is more familiar with this and I wish you the best of luck in whatever decision is made in your best interest.
OK - forgive me if I've made any typo's - my hands have trouble typing for any extended period of time!!!!
God is SO good - His blessings are endless!
Trust in Him with all your heart!
Know He's in control over every situation you face!!