- Thanks so much for the info you supplied ROSE with!! Great stuff to share!!!
ROSE - Welcome!!! Like RESA said, this is an awesome place to gain information. I personally think you should go back SEVERAL "parts" of this forum to get as much info and you possibly can. Educating yourself and seeing all the different healing processes from everyone is very, very beneficial. It is time consuming but well worth the time.
Your fears are well warranted - this is a huge surgey and recovery process. Although we've all had the surgery (or most of us), you can and will see we're all different in our healing and recovery time. You're very young and I think that is on your side!!
My personal experience is that I felt like I was ran over by a train the first week post-op. I don't mean for this to scare you - honesty is the only way to go here. This is a HUGE surgery and somewhat lengthly recovery. It was a good 12 weeks before I began to feel "normal" again and a full 16 weeks before all the soreness and tenderness went away in my abdomen. My surgery was also done laparoscopic, I went home from the hospital on my fouth day post-op, I didn't have any drains to take home with me - as you can see - no one is alike - some here had longer hospital stays, some had more pain than others - the list goes on and on. That's why I think you should go back to past "parts" of Totoal Colectomy and get as much info and you possibly can before surgery.
The bottom line here is that I would have this surgery again in a heartbeat, no questions asked!!! It was worth EVERYTHING I went thru to get to where I am today. My story goes all the way back to when I was 15 months old and I'm now 44. My surgery was 11-09-06 and I'm down going anywhere from four to eight times a day to once, maybe three times a day - Sometimes only once a day.
My sugeon did advise me that once our small intestine gets used to playing the roll of the colon - the possibility of transit time could decrease which held true for me. It takes anywhere from a full year or so for the body to completely heal and regain some type of normalcy.
I lost 30 pounds within the first three weeks post-op - I've regained eight pounds back - somewhere in the 16 week post-op period - and I've been holding since. In the beginning your appetite decreases and your tolerance for certain foods play a roll (not to mention the weight of the colon itself that's removed).
Don't think of this surgery as "altering" your life in a negative way. Yes, you may go to the bathroom several times a day for the first few months, but can you honestly say your social life is good at this point in the game? If you're like the rest of us here, you're more than likely bloated and looking pregnant, not to mention the pain and discomforts of being constipation. as well as, all the toxins our bodies are retaining from a non-functioning colon. We're literally sick because of constipation.
For 40 plus years I NEVER knew what "normal" was and I will ALWAYS gladly welcomed every bowel movement I have - no matter how many times a day I go. This is what I consider a new lease on life!!!!!
Well, I guess I've rambled on enogh. Like I said above, GO BACK to previous "parts" of the Total Colectomy thread where you will find a wealth of info. If anything, go back to at least "parts 10 or 11"
I wish you all the luck and I hope you continue to post here. This is a great place and the people are WONDERFUL!!! We try to encourage anyone facing or going thru this and try to answer questions in a real and truthful way.
God is SO good - His blessings are endless!
Trust in Him with all your heart!
Know He's in control over every situation you face!!
Post Edited (Stuck42Long) : 6/26/2007 7:12:53 AM (GMT-6)