Hi, ladies.. It seems like we're all in different stages, but all are experiencing or have experienced the same things, so we all share a HUGE common bond together.
Since I found this forum, I have been more upbeat and feel like I'm more prepared to have my colectomy surgery. I made my descision to have this surgery over the telephone with my surgeon, and have been scheduled for almost the past two months. I had eight solid days of testing, to help my surgeon give me my alternatives. I've probably been able to talk to him for about 20 minutes total, so you all are a blessing. Up until a few months ago, I didn't even know what a colectomy was. A different doctor told me that I needed a colostomy. I have colonic inertia and sphincter problems, so I really didn't know what a colectomy was or how to expect my hospital stay to be.
I feel like I know each of you, because I continuosly read your bulletins as often as time allows. I'm keeping a running list of all of your suggestions, and I think that I have 5 pages so far, from ointments for sore bums, to gum, and nutritional low residue diets after surgery.
I was really worried about the ng tube, so I called my doctor. Another doctor called me back and said that it would be taken out during surgery, unless I had complications. That was a little bit of relief, and I am so ready to have bowel movements again. I can go for a month without having any movement. The only way that I can do anything is to have 4-5 warm water enemas. I now that I have to be toxic. My poor husband can help me with his eyes closed, now..
My co-worker is going thru everything that I have gone thru, and you, too; however, she doesn't have the same medical insurance as me, and I pray that she can have a doctor that will provide her with the options and care that she needs. She too has been diagnosed with colonic inertia, but is just beginning the process of trying to get appointments with specialists. I ran my cell phone bill up for months, trying to get someone to listen to me, and finally help me. When I complained of constipation, my cries for help, and hers, have fallen on deaf ears. Our GI doctors where we live, still do not understand.
Again, I am so grateful for this sight. My surgery is scheduled for August 8, so I am counting the days, hoping that they'll go by soon, before my tummy bursts. I am so gassy, that I have 2 air fresheners hidden in my office, and still feel like everyone can smell me. It's been horrible, but I hope to feel better soon. Also, after all of your advice, I will walk as soon and as much as I can.. I've made that promise to myself. I don't really handle pain very well.