Just wanted to add my two cents here. I have had an ileostomy now for 26 years. I have NEVER regretted having the surgery. After being as sick as I was and knowing where every bathroom was from here to timbucktoo, surgery was a BLESSING! I have never felt so freed, so happy to have the chance to get on with my life. I was also on that dreaded prednisome, nasty stuff. Also the side effects were so bad....I really had no choice but to have the surgery as my colon perforated on the operating table after an exploratory to see exactly what was happening in there. Doctors suspected UC but they needed to know just how bad it was so off I went. I ended up with a colostomy at first, spent about a month in hospital building my body back up, then had my permanent ileostomy performed. In total I was in for 3 months, but please don't think this will happen to you. I had many complications that led to my long stay. It takes awhile to get back on your feet again but always remember this...keep moving. As much as it will kill you to get out of that bed, get up and walk. I thought to myself when the surgeon came in the day after my 10 hr surgery and nearly pulled me out of bed...."MY GOD, what is this guy thinking" I can't move and sure enough I was up, albeit a bit bent over from the sutures. Everyday, I got out of that bed and walked a few steps. A few steps led to a few strides and got to the point where I was wearing the rug out in the hallway of the hospital! Moving is so essential to getting yourself better. You won't regret having surgery believe me, at first you probably will think, "oh why did I choose this" but in the end it is SO WORTH WHILE! It now takes me less than 10 minutes to change my appliance and that is usually only once a week. Don't get me wrong, I do have occasional accidents when I have to change more but basically that is all I do. I have been given a new life so to speak. My ostomy is now a part of me now and I thank God it is there and it saved my life.
As far as the Remicade is concerned. My son also has UC. He has been the gambit of drugs and his last resort was Remicade. He had a very difficult time with it. He says it seemed to make it worse so he went off it. He is back on the only thing that does help and that is the dreaded Prednisome. He only takes it every other day and its a small dose. He finds that he doesn't get the side effects if he takes it every other day.
So with that, I hope I helped you some. If you would like to chat more, you can reach me at firstname.lastname@example.org and I would be more than happy to help you out.
"Sow a thought, and you will reap an act,
Sow an act, and you will reap a habit,
Sow a habit, and you will reap a plus character,
Sow a character,and my dear you will have reaped a
God appointed destiny!!!!
Diag. Type II Glipizide 10mg.X2 Celebrex200mg Accupril 20mg. also permanent ileostomy since 1981