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Regular Member

Date Joined Apr 2007
Total Posts : 24
   Posted 5/28/2007 9:03 PM (GMT -7)   
I am a 19 yo male living in Mandurah Western Australia and HAving an Ileostomy on the 5th of june due to Crohn;s disease. Just wondering if anyone can offer any advice or tips as I am very frightened and depressed about the whole thing at the moment.
and has anyone got any advice on dating with a iliostomy and all the associated problems with having to show the person eventually etc.

Forum Moderator

Date Joined Feb 2003
Total Posts : 1251
   Posted 5/29/2007 3:21 AM (GMT -7)   
Hi lbw, I live in Perth :) I'm 40 years old and have had my ileo for 31 years due to UC. Email me at and I'll send you my phone number if you like so we can chat :)
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Regular Member

Date Joined May 2007
Total Posts : 33
   Posted 6/2/2007 2:47 AM (GMT -7)   
Wishing you all the best lbw for the 5th..take care,and hopefully we will be hearing from you when you feel well enough to let us all know how it all went..
Take care,best wishes..nursy2
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2

Regular Member

Date Joined Mar 2007
Total Posts : 21
   Posted 6/2/2007 4:28 AM (GMT -7)   
I just had mine done on april 25th. I promise the apprehension prior to the surgery is a lot worse than after. I just had to get to the other side. Wishing u well.

Living with Crohns for 16 years. Numerous surgeries and hospital stays. Lots of fistulas and infections which caused a log of damage. Got the bag on April 25th 2007 and reconstruction which they took a muscle out of my thigh.

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