Overwhelming Product Options.

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Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 5/30/2007 11:17 AM (GMT -7)   
I am trying to sift through all the information on ostomy supplies and am amazed at all the options to choose from, it's almost too much.  My ostomy nurse said that there are two med shops in town that do carry supplies.  The other option would be mail order.
 
What has worked best for you?  I'm not necessarily concerned about the price but more for the quality of the product.
 
Crohn's/Colitis 2003.  Remicaid, Pred, Dipentum, FishOil, 6MP, Vitamins  
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 5/30/2007 11:42 AM (GMT -7)   
Check with your insurance. If they pay for the supplies, they usually have a contract with a specific supplier, even if it's on the other side of the country. Watch for yearly maximums, co-pays, etc. You want to keep track of the dollar amounts, the suppliers aren't good about telling you when you've met your max, they just bill you.

Sometimes insurance will say they don't cover "durable medical supplies" but will cover "prosthetics for missing body parts" which can also be a category they're covered under.

It's nice that you have shops in town for an emergency, and hopefully you have knowledgeable clerks that can help you and answer your questions. Sometimes these little shops will have an ostomy day where they bring in speakers and ET nurses for any questions you have. They'll also have representatives from the different ostomy companies pushing and giving out samples. Ask around.

After your stoma has stopped shrinking, it's nice to get a pre-cut flange. Your first step is to choose 1 piece or 2 piece, closed end pouch or open end pouch, flat or convex flanges. After you answer those questions it's just a matter of personal choice. And you're not locked in, you can always try something new, change anything. When I used to work in one of those little shops, all the company reps would give me the new stuff to try. It was great, and I would have first hand experience to talk to the patients and ET nurses about.

Good luck, let me know if you have any questions.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 5/31/2007 9:24 AM (GMT -7)   

I live in a town of about 60,000+ and growing strong.  My ostomy nurse has a ostomy support group scheduled once per month that I think will prove to be an excellent resource of products and ostomy information.  She brings in reps and samples.

I am going to chech with my insurance first thing before shopping online or catalogs.

One more question, how much of this medical can be taxed untaxed for my 2007 federal and state taxes.  I had the surgery, complications, hospitalizations, and now all these medical supplies.  Is there any kick-back that you know of?


Crohn's/Colitis 2003.  Remicaid, Pred, Dipentum, FishOil, 6MP, Vitamins  
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/2/2007 7:25 AM (GMT -7)   
I know you can deduct medical expenses, I have for years, but don't ask me any details, I just give my accountant the info and he does the rest. I'm luck these days, I have an HMO with a great clinic and my out of pocket expenses are pretty minimal.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/2/2007 7:40 AM (GMT -7)   
I really do feel so sorry for you all,what with having to come to terms with all sorts of ostomies,and then have to pay for your products...
In england i just get the prescription from my g.p and send it to my delivery service,they precut to the size i need and send it to me by a delivery service..i am exempt from any payment..
If i could send you all some i would believe me.
I realise how lucky i am..it should be like this all the world over..
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
nursy2


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/2/2007 9:47 AM (GMT -7)   
Yes, the insurance companies over here are covering less and less. It used to be that my supplies were completely covered, no co-pay. Now, I have a co-pay, and a yearly maximum. I only have that because my doctor fought the battle for me, they were trying to say they weren't covered at all, but they are considered a prosthesis for missing body parts, so they have to cover them. Unfortunatley, most prosthesis, like limbs, have a one time amount, so my yearly is pretty low. I use a lot of supplies, I have a real problem stoma, and stool like acid that eats through everything so it can get pretty expensive by the end of the year.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 6/3/2007 5:05 AM (GMT -7)   
I use Coloplast assura drainable one piece midi size(thats a mouthful isnt it?lol) I have used them from day one and I dont know what I would do if I had to change to somthing else because they are so comfortable and hard wearing.

As for the insurance side of things,I am the same as Nursy2 I live in England and its all free. We are so lucky I think. I just hope that it doesnt change.

Sue


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/4/2007 11:52 AM (GMT -7)   
Medical bills can be deducted, but you have to have 7.5 percent of your income in bills.
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