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nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 3:19 AM (GMT -7)   
I have tried numerous products that have been recommended by my stoma nurse..but i have not been impressed..
Has anyone got any tips of other ideas to reduce the odour when changing bags,in the public loos...
I have lost count of the perfume that i have used to help with this tongue ..
Many thanks..nursy2.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/1/2007 8:09 AM (GMT -7)   
I have had a lot of luck with the M9 drops. You just have to use more than they say to use. A few drops doesn't work, depending on your stool, liquid or solid, you need to give a good squirt each time you empty your pouch. Has always worked for me. I go through a lot of bottles every month, but I make sure I have an Rx signed for as many as I need so my insurance will pay for it. I think this product is probably one of the most important products I use, as I have bottles in my purse, in my bathrooms, in my bathroom at work, and emergency bottles in my car and my husbands car. If you buy a box of the little bottles, they're eaisier to carry and can be refilled from the big bottles.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/1/2007 8:11 AM (GMT -7)   
P.S. If did forget to mention. If you're a new ostomate, your bowel may still be adjusting, you may still be having a lot of gas. There is nothing you can do about the gas odor, it is what it is. You can make the stool odor minimal like I outlined above.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 9:02 AM (GMT -7)   
Thankyou Judy.I will give this a try for sure..
As you say,It does seem very active and with time i have been told it will settle down into its own sort of pattern..
It is so embarrasing when it keeps making lots of noises..
I was helping one of my patients the other day,and it made the dreadful noise...oh i nearly died!!!!!.But it broke the ice (ha ha)
Many thanks..nursy2
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/1/2007 9:34 AM (GMT -7)   
Nursy2,

If you can feel the rumble coming on, you can slap your hand over your stoma and it muffles the noise. I walk around with my "hand in my pocket" a lot.

Keep a sense of humor, it helps ;0)

How have you kept working through everything you've gone through? I'm just hoping I can finish school after all the time I've already put in.

I'm just now applying to the nursing programs in my area, finally finished all my prereq's. Unfortunately the programs are so impacted here that I'll be waiting years.

I'm really sorry to hear about your husband wanting out, hopefully you'll be better off without him.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 9:58 AM (GMT -7)   
I have only been back to work for a couple of weeks,it is okay,mainly because it is not a strenuous job,mainly it is visiting patients who need help with their mental illnesses..
Although it has been hard because i have worried about the seal going or worse,so i decided not to eat anything during work time,but that ended up being silly,because apart from having the dithers,due to no food,I was like a starving animal when i got home...funny really,i was grabbing the biscuit tin,chocs out of the fridge.anf raiding the freezer for something quick to microwave..oh what a laugh...anyway i seem to have perfected it now....
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 6/1/2007 10:44 AM (GMT -7)   
nursy2 said...
so i decided not to eat anything during work time,

I think that we have all made this mistake,not realising that eating nothing at all can actualy make the gas problem worse. Regular meals is the best thing. It doesnt take too long before you get to know the times when your stoma is more active than others. I hear many ostomates say that first thing in the morning is the quiet time for their stomas. Mornings for me though is the most active and then it settles after breakfast.
 
As for the odour problem. I have been using 3% hydrogen peroxide for months now. Half a cap full in the bag after every empty and it kills all odour. I was a bit unsure about using it when I first heard about it but I havent had any problems with it at all. I carry a small sqeezy bottle around with me when I go out so that I am never without it.


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 10:57 AM (GMT -7)   
Thankyou,can i buy hydrogen peroxide from chemists?
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 6/1/2007 11:06 AM (GMT -7)   
I am in England and I buy it from the chemist. Make sure you only get the 3% solution wont you because they also do a 6% and a 9% and that is much too strong.


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 11:16 AM (GMT -7)   
:-)  thankyou and yes i will be careful what i ask for,i will go to the chemist in the morning..oh this has given me hope,as it is worrying when i go anywhere and need to empty it..
many thanks..

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/1/2007 4:34 PM (GMT -7)   
Just be careful of what you put in your pouches. I'm not sure about the 3% HP, but I know a lot of things can degrade the lining, which is odor proof, and then is counterproductive. I know some soaps can, so never wash your pouch with soap. If you have to, just rinse with a little water, but it really doesn't even need that.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 8:56 PM (GMT -7)   
Thankyou judy,I will be careful..
I just get so embarassed about the odour,which i am sure many are,i never realised this could be a problem,i am aware that certain foods can make it worse..
many thanks..nursy2 x
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 6/1/2007 9:15 PM (GMT -7)   
I love 3% hydrogen peroxide. I've been using it for at least two years now without a problem. It's safe to use as a mouth wash and is used for cuts and scrapes as well. It won't hurt your stoma at all. Just put a squirt in the end of your pouch when you empty and next time you empty, there is no odour :)
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 9:18 PM (GMT -7)   
Hello shaz,I will be giving it a try,I will go to the chemist as soon as its open and get some..is it something that a chemist may ask what it is for? or is it just a run of the mill product that can be bought over the counter?


I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 6/2/2007 12:14 AM (GMT -7)   
I've never been asked before why I'm getting it - we can get it OTC at chemists or even in the first aid section of supermarkets here in Australia.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/2/2007 1:00 AM (GMT -7)   
Many thanks,i just wondered,knowing my luck there would be a full chemist and if i am asked what it is for i would go a lighter shade of pale(ha ha)
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 6/2/2007 1:43 AM (GMT -7)   
When I first started using the HP3% I found it on the shelf in a chemist and they didnt ask me what I wanted it for. Because this chemist was a bit far for me to walk to though I asked at the pharmacy that is next door to my Doctors surgery if they could get it for me. There was a couple of other people in there at the time and I was asked what I wanted it for. I said "It kills the odour in an ostomy bag"I just came straight out with it because I didnt know what else to say. The pharmacist(sp) just said "oh" without batting an eye. I always buy it from there now. it isnt expensive either,I pay 80p a bottle here in England.


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/2/2007 1:46 AM (GMT -7)   
Smiling here...I don't know if i could just come out with the reason,but good on you..well done xx
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 6/2/2007 1:48 AM (GMT -7)   
Judy, I did worry at first about what the HP might do to the pouch but I have never had a problem with it at all. I have never used water in my pouch/bag,I just clean the end with toilet paper after every empty,add the HP and off I go :-)

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