Pregnancy and Ileostomies

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New Member

Date Joined Jun 2007
Total Posts : 15
   Posted 6/4/2007 12:18 PM (GMT -7)   
I am new to this site and i am finding it very helpful with my ostomy.  I have had an ileostomy for about 6 years, my fiance and I are getting married in august and we are talking about having children.  Is there anything i need to know, is pregnancy difficult with a stoma, does it hurt, does it change?  Any information would be great, I have been thinking about it alot lately and it is a big fear of the unknown!!  Thanks...
Crohn's Disease for 15 years
Currently no meds...
I have an ileostomy and it is the only thing that made the quality of my life better...

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 6/4/2007 5:45 PM (GMT -7)

Has tons of info on ostomies and some discussion about being pregnant with one, just do a search.
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.

Forum Moderator

Date Joined Feb 2003
Total Posts : 1250
   Posted 6/5/2007 2:42 AM (GMT -7)   
There's stories from women who have experienced pregnancy after surgery at

Good luck.

I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 6/19/2007 12:50 PM (GMT -7)   
My stoma changed a lot. It was like starting over at times to find a good fit. Also, when I got sick (lots of coughing) my stoma came out about 3 or 4 inches. It went back in on its on once the coughing stopped. After the delivery the ET nurse came by and mentioned she had never visited the ob before (in a professional capacity that is).

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/19/2007 7:05 PM (GMT -7)   
I can see where the coughing, and probably throwing up would mess you up.  I don't have any advice on the stoma part, but something you can do to reduce the coughing and stuffiness (you get lots of extra mucous when you are pregnant) is rub vicks vapor rub around your nose and under your eyes where your sinuses are.  If you can stand the smell it will help keep you cleared out and reduce the gagginess and coughing and throwing up.
good luck and congrats on the wedding!
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