getting my ileostomy reversed next week

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Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 6/12/2007 6:27 PM (GMT -6)   
Hello everyone,
I have been through so much in the past months.  I have had Crohn's for 20 yrs and in February I had my 1st CD related surgery.  My ileum was perforating so they did a resection a week later they had to go back in I had adhesions, an abscess and 1/3 of my lg intestine was toxic megacolon.  THen after that surgery I had an abscess drain put in on the right the left abscess was too small.  They removed the drain the next surgeon was on vacation when the drain was put in and removed...they followed by doing a colonoscopy since it appeared that my rectum walls were thickened.  I think I had a total of 15 Ct scans since Feb 11th.  I was readmitted to the hospital after only being home 1 day the CT revealed the abscess was back.  Not to mention I had a wound vac on due to an inscision infection.  The next day they went in to place a drain and the abscess was gone.  I stayed a week and was sent home again.  about 1 week later I was readmitted again.  The abscess was back, they were able to place the drain in it the following day.  They discovered that the abscess had made fistulas to my stoma site and to my wound and it was dissappearing due to the wound vac's suction.  To this day I still have the drain and the abscess is no longer getting better.  I have been on Augmentin 875 mg 2 times a day since March 30.  
I am going back to surgery next week to remove the abscess for good (I hope) and at this time they are going to reverse my ostomy.  The SBFT that I had last friday showed normal loops in the small bowel and no fistulas at this time.  My surgeon is going to have one of his assoc colorectal surgeons assist him this time rather than a resident.  They blocked out the whole day from their surgery schedules to focus on me.  I will be in for at least a week, and I am praying for no complications this time.
The way my stoma healed was away from the skin therefor feces is getting between the layers making this abscess stay.  Every day I flush the drain and the sterile saline comes out around the pig tail catheter, around the stoma, out the bottom of my inscision, and some goes back into the drainage collection bag.  I chose a different hospital this time due to residents screwing up my treatments royally as well as the 1 who let feces get into my inscision causing that issue.  Others wrote out my Rx when discharged and for the wrong amounts and length of time.
Hopefully after this surgery I wont need another for a very long time again if ever again but with Crohn's you never know :(
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 6/13/2007 1:56 AM (GMT -6)   
Good luck with it Dragonfly. You've certainly been through the wringer! I hope this surgery goes relatively smoothly for you and that your Crohns behaves itself for quite a while.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

Elite Member

Date Joined Apr 2007
Total Posts : 32602
   Posted 6/18/2007 8:19 PM (GMT -6)   

Dear Dragonfly,

Hi, I am Kitt. My husband has had Crohn's for 31 years and has had 3 major surgeries.  He also developed an abcess which they put a CT guided drain in.

After that he was not allowed to eat anything but hi calorie, hi protein, clear  liquids for 6 weeks over Christmas that year. The abcess went away after many meds and he fianlly went to surgery.  They thought he would need an ostomy but he did not.

A dear friend of mine has had Crohn's since she was 16, many surgeries and now on hperal every night for nutirtion.  She has an ostomy.

I know where you are coming from, I know the many problems and issues that Crohn's can cause.  I will be offering prayers for a successful reversal of your ostomy.

You are not alone.  I will look for your posts.

Gentle Hugs

Moderator Anxiety ~ Panic Disorders
Dx: Anxiety/Panic, Depression 
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 6/19/2007 12:18 PM (GMT -6)   
sounds like a nightmare.....the good part about it is you can really understand the agony and suffering others undergo......and so you can relate to them. Because of my experience with Crohn's, I can totallly relate to your feelings. I know how frustrating it can be when the symptoms just keep getting worse and nothing seems to make things better....stay with it though...fight the good fight.

Without the truly crapty days (no pun intended), you can't fully appreciate how good the the good days really are.

good luck with the reversal.....
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