I'm so sorry to hear you've been so sick. Getting a correct diagnosis is absolutely necessary, so either your doctor or another one has to do some tests to find out what you really have. Once you have a diagnosis, then you can find out if it can be treated with medicine or surgery.
If you find out that surgery is the best way to fix your problem, then I assure you that your quality of life will improve drastically.
My colon was diseased with Crohn's for 7 years, and I was also scared to have it removed. But once they removed it, I felt better right away, and I do have my quality of life back.
Having a ileostomy is so easy compared to being sick. It takes me less than 10 minutes a week to change the adhesive wafer. If you had one, you'd be able to eat solid food again, which would be a Godsend right now.
I would not wait on this. Either your doctor has to do the tests or you need to find another one who will.
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06. Pain-free, med-free, and very thankful to be healthy again :)
Post Edited (flchurchlady) : 7/29/2007 8:31:40 PM (GMT-6)